Author Topic: AN-er's in Hampton Roads, VA  (Read 8650 times)

lori67

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AN-er's in Hampton Roads, VA
« on: July 09, 2011, 07:42:09 pm »
SkipG and I were talking about trying to get an informal gathering together of any members in the Hampton Roads, VA area. 

Those Yankees in Bawston have their apple dumplin's - let's show 'em how it's done with.....crab cakes?  Krispy Kreme donuts?  A bottle of sunscreen and some beach chairs?   ;D

Let me know if you're in the area and we'll figure out a central meeting place and see what we can set up!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Tod

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Re: AN-er's in Hampton Roads, VA
« Reply #1 on: July 09, 2011, 08:03:24 pm »
I am occasionally in the HR area. Let me know when and where and I will try to come down.

As to the food, this seems like it should be ideal: softshell scrabs between two Krispy Kreme glazed, with RC cola and moon pies on the side.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

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skipg

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Re: AN-er's in Hampton Roads, VA
« Reply #2 on: July 09, 2011, 08:49:19 pm »
Here I am trying to eat healthy and you guys are going to clog my arteries. To say nothing of a blood pressure spike. Looking forward to getting together. By my guess and after talking to two AN neurosurgeons there should be over one hundred AN people in the Hampton Roads area. With our total pop of approx 1.5 million, statistics would say about 75 -120 per this population (5-8 per 100,000). Would love to meet Tod the Appalachian Trail Man. The only portion I did was up to Mt. Rodgers from Grayson Highlands Campground. (Highest peak in Virginia)

Skip
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

GM

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Re: AN-er's in Hampton Roads, VA
« Reply #3 on: July 11, 2011, 03:25:55 am »
I'm in!!  Let me know where and when...   :)

Gary
Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

ppearl214

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Re: AN-er's in Hampton Roads, VA
« Reply #4 on: July 11, 2011, 04:04:42 am »
Those Yankees in Bawston have their apple dumplin's - let's show 'em how it's done with.....crab cakes?  Krispy Kreme donuts?  A bottle of sunscreen and some beach chairs?   ;D

There's always an apple dumplin' on reserve for ya, Lori! (and all/all of you!)... our next brunch is October.  Hoping you all have a VERY successful get-to-gethah' and me thinks it needs to be crabcakes on a beach. 

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mei Mei

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Re: AN-er's in Hampton Roads, VA
« Reply #5 on: July 11, 2011, 08:55:47 am »
I love tod's menu.   So tempting
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
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Post surgical Headaches and Tinnitus
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Rick Everingham

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Re: AN-er's in Hampton Roads, VA
« Reply #6 on: September 06, 2011, 09:07:22 pm »
Just saw this thread, I am in Williamsburg.
1.5x1x1.2cm AN surgically removed by Tans Lab Jul 30, 2003, McGuire VA Hospital in Richmond, VA.

leapyrtwins

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Re: AN-er's in Hampton Roads, VA
« Reply #7 on: September 07, 2011, 12:48:59 pm »
Damn!  Wish I lived in VA  :'(

I'll get there one day, Lori  :-*

Yay, yay, Phyl, I know . . .

My apologies for the hijack!

Jan  >:D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: AN-er's in Hampton Roads, VA
« Reply #8 on: September 07, 2011, 06:56:59 pm »
Damn!  Wish I lived in VA  :'(

I'll get there one day, Lori  :-*

Yay, yay, Phyl, I know . . .

My apologies for the hijack!

Jan  >:D
forgiven  :-*
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mei Mei

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Re: AN-er's in Hampton Roads, VA
« Reply #9 on: September 09, 2011, 08:02:24 pm »
Wish we could all be together.   The closest is the Forum and I love the Forum.   How far is Hampton Beach from DC?   I've never been there.  My daughter lives in Charlottesville.  Is it far from Charlottesville?
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

leapyrtwins

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Re: AN-er's in Hampton Roads, VA
« Reply #10 on: September 10, 2011, 06:52:03 am »
Wish we could all be together.

Rumor has it the JKL trio has plans for a big meet up in 2013.  Will probably interfere with the shindig sponsored by HEI, but what the heck  ;D

Sometimes you have to go where your heart takes you.

Jan (1/3 of that infamous trio)  >:D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: AN-er's in Hampton Roads, VA
« Reply #11 on: September 10, 2011, 09:01:35 am »
Mei Mei,  Virginia Beach (Hampton Roads area) is about 3 1/2 hours from Charlottesville - about 4 hours from DC.

I didn't forget about organizing a get-together.  I've been dealing with a case of bronchitis that doesn't seem to want to go away and with school starting, things have been a little crazy around here.

Jan, the "JKL Symposium" may not be as informative, but I'll bet it will be a whole lotta fun!   >:D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Mei Mei

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Re: AN-er's in Hampton Roads, VA
« Reply #12 on: September 10, 2011, 09:05:56 am »
Pardon my ignorance but what is. I'll?
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

leapyrtwins

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Re: AN-er's in Hampton Roads, VA
« Reply #13 on: September 10, 2011, 08:28:47 pm »
Mei Mei, I'm not sure what you are asking  ???

Can you clarify?

Thanks,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mei Mei

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Re: AN-er's in Hampton Roads, VA
« Reply #14 on: September 12, 2011, 06:58:31 pm »
Oh my...It was a typo.   I've been without internet for over a week now so I dash to Barnes and Noble and catch up in a hurry coz I have to get back to the house.   I meant to say what is JKL Symposium?

Sincerely,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh