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Author Topic: too early for happy tears????  (Read 14037 times)

ppearl214

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too early for happy tears????
« on: November 22, 2006, 01:27:41 pm »
Well, this past weekend at the AN NE brunch, was talking to jcinma (Jane) and shared with her the situation about my headaches (combo from AN and Chiari 1)..... so, she tells me about "exertion headaches".  She had the same symptoms that I currently have... had no clue there was an actual "name" to it.  so, I did my online research....

Well, with all going on, I called BI to my radio-oncologist, Dr. Mehatevan.... so, he says instead of waiting until Feb for my next MRI, lets get one done pronto.  I tell him about the MRI center near me that has been doing the MRI's (other than the ones done at BI for CK).  So, he has my primary care dr book the MRI for... 9:30pm last night!

So, I get the MRI done (with and without contrast), grab the films and 2 burnt CD's (one for BW for the Chiari, one for BI for Dr. M).... they tell me the "wet read" will be available in the am.

So, I bring home the films... and there are 3 really gorgeous views of my AN.... well.... are my eyes deceiving me?  Do I see the center area kinda "shadowed" and dark?  Naw... can't be... it's only 7-1/2 mos post CK!

So, I go the my primary dr this am to discuss the exertion headaches and how we can get them in line with meds and such... she orders other tests for me to rule out a few issues... of course, I brought the films with me.... so, I show her the 3 really good pics of the AN.....now, she knows her stuff and is on the ball.... so, she gets the nurse and has her contact the MRI center for the wet read.... was in our hands within 5 minutes....

so...what does the report say, you ask?

"There is a left proximal internal auditory canal now more rim enhancing mass, measuring 8.5 x 6mm, slightly smaller than prior study.  Central lucency (no, not LUNACY!) is perhaps the result of interval radio surgical treatment versus interval mild cystic change"

So, now I'm thinking... necrosis? Maybe?

So, off to the post office to expedite the CD to BI.  Dr. M will be in Monday to view it, as well as the wet read........

So, your thoughts? Necrosis?  Lit up from the radiation?  Too early to tell? Wait for dr on Monday?  Pour a stiff drink and chill out?  Thoughts?

Phyl
« Last Edit: November 22, 2006, 01:30:19 pm by ppearl214 »
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ppearl214

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Re: too early for happy tears????
« Reply #1 on: November 22, 2006, 01:53:16 pm »
ADDENDUM:

MRI CONCLUSION:

"Interval presumed mild cystic central change in the left proximal IAC Vestibular Schwannoma, with some mild interval decrease in size as descrbed"
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Dealy

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Re: too early for happy tears????
« Reply #2 on: November 22, 2006, 02:03:59 pm »
Boy-that was fast. I was typing a reply indicating that necrosis might be in progress. Sounds like it is to me. Wow and to think I am experiencing the same thing as you and I am onlycoming up on 5 months out. My next MRI is in 5 weeks. I posted under Radiosurgery this morn on results of my doctors visit yesterday. Have a feeling I will be on Steroids again by Monday. Good News to hear about your AN. I am apprehensive what my next MRI will show-but hey one always has the hope for the best. GOOD NEWS-LUCKy YOu.
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Gennysmom

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Re: too early for happy tears????
« Reply #3 on: November 22, 2006, 05:42:19 pm »
Yea Phyl!!!!  You need some good news!!!!!!!!!  I do indeed hope that it is necrosis.  It does sound promising.  I think that at the very least, pour that drink!!!!!!!!!  Chilling out is always good, especially right before a holiday!!!!!
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Sue

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Re: too early for happy tears????
« Reply #4 on: November 22, 2006, 06:38:04 pm »
Champaign for everyone!!  Woohoo.  Hope it is all good news, Phyl.

Sue in Vancouver
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Obita

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Re: too early for happy tears????
« Reply #5 on: November 23, 2006, 07:42:45 am »
Phyllis:

HAPPYTHANKSGIVINGTUMORISDYING!!!!!!!!

Kathy
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krbonner

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Re: too early for happy tears????
« Reply #6 on: November 23, 2006, 07:53:40 am »
That all sounds positive to me, Phyl!  Death to tumors!!

Happy Thanksgiving!

Katie
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ppearl214

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Re: too early for happy tears????
« Reply #7 on: November 23, 2006, 09:10:05 am »
cautiously optimistic folks... incidcators are there on report and films... why is it that we always seem to have to wait through weekends (and this one being a longgggggg weekend for me) to get answers????

I'm feeling good news coming!  I'm feeling it so much I can taste it!

Keep those fingers crossed!

Happy Thanksgiving all!!!!!!!!!!!!!

Phyl
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Larry

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Re: too early for happy tears????
« Reply #8 on: November 23, 2006, 03:27:46 pm »
Phyl,

WOO HOO
i'M SURE IT'S "GUNNU BE GOOD"


laz
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ppearl214

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Re: too early for happy tears????
« Reply #9 on: November 23, 2006, 06:10:20 pm »
Quote from: Larry on November 23, 2006, 03:27:46 pm
Phyl,

WOO HOO
i'M SURE IT'S "GUNNU BE GOOD"


laz

I hope so Laz... I hope so.. .and sending you MAJOR huggles that you are feeling ok.

xoxo
Phyl
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marystro

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Re: too early for happy tears????
« Reply #10 on: November 23, 2006, 10:47:51 pm »
Phyl - that must be IT!  I have a good feeling that it will be good news on Monday!!!

Early celebration in order!!!!!!!!!!!!



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Battyp

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Re: too early for happy tears????
« Reply #11 on: November 24, 2006, 12:54:21 am »
Geesh, I break my puter and see what happy news I miss out on!  Doing a happy dance to celebrate and keeping all my toes crossed you get the good news esp after such a long weekend! :-*

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Patti UT

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Re: too early for happy tears????
« Reply #12 on: November 28, 2006, 03:12:36 am »
Hi Phil,
  What a scare, So happy the news was good. No more bad news allowed!!!

Patti Ut
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rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Obita

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Re: too early for happy tears????
« Reply #13 on: November 28, 2006, 06:21:31 am »
Did you get the official report Phyllis??  KO
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matti

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Re: too early for happy tears????
« Reply #14 on: November 28, 2006, 10:12:49 am »
Hi Phyl - I've got fingers, toes and eyes crossed, anxiously awaiting the good news!!

it's the magical healing farts from princess Beanie ;)

hugs,
Cheryl
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