Author Topic: GK on 9/17 - extreme vertigo in 48 hrs  (Read 326 times)

GMDizzyndeaf2

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GK on 9/17 - extreme vertigo in 48 hrs
« on: September 23, 2024, 08:22:14 am »
Hello,
I had gamma knife on 9/17/24 and was fine until 48 hours later. Vertigo was so bad that I was vomiting. Couldn’t open my eyes without room spinning and nausea. I was prescribed Ondansetron (4mg)3 doses for nausea and motion sickness chewable tablets. That stopped the vomiting but not the vertigo whenever I moved my head. Then my neurosurgeon called to check and wanted to try a steroid taper. I started 1 tablet (2mg) Dexamethasone 3 times a day on the afternoon of 9/21. The extreme vertigo has lightened unless I try focusing a distance.
My question is has anyone had this reaction and recovered from vertigo after the steroid taper or PT?
Thank you for positive feedback.


MRI - 7/19/2024
AN - 10mm in length by 4-5mm by 4-5mm
GM - 9/17/2024

UkulelesAreAwesome

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Re: GK on 9/17 - extreme vertigo in 48 hrs
« Reply #1 on: September 23, 2024, 05:17:21 pm »
I had the same situation. I had GK on a Thursday 8/11/22. I rested that day and the next day. The following day I thought I was doing great so I did a bit of laundry. I ended up sitting on the basement floor until the dizziness subsided. I made it upstairs slowly and spent the evening vomiting. It has not happened again to the point of vomiting. I take Dramamine if the dizziness and nausea are bad. I did not contact the doctor at the time so I was not prescribed anything.
Left sided AN diagnosed April 2022
Gamma Knife August 2022 - AN 1.6 x 1.1 cm
Aug 2023- stable
April 2024 - 1.7 x1.3 cm
Mild ventriculomegaly

UkulelesAreAwesome

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Re: GK on 9/17 - extreme vertigo in 48 hrs
« Reply #2 on: September 23, 2024, 05:21:21 pm »
I forgot to add I struggled a bit with dizziness for a couple weeks and it was hard to look at a computer screen or go for a walk. Vestibular rehab helps a lot. Also be careful not to turn your head too quickly.
Left sided AN diagnosed April 2022
Gamma Knife August 2022 - AN 1.6 x 1.1 cm
Aug 2023- stable
April 2024 - 1.7 x1.3 cm
Mild ventriculomegaly

GMDizzyndeaf2

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Re: GK on 9/17 - extreme vertigo in 48 hrs
« Reply #3 on: September 24, 2024, 08:14:42 am »
Yes, turning my head quickly is not fun. I have to learn the new me.
I will ask about vestibular rehab, thank you!

mwatto

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Re: GK on 9/17 - extreme vertigo in 48 hrs
« Reply #4 on: Today at 08:10:39 pm »
Chat to your specialist about 1 mg diazepam for when you get these attacks. Its supposed to help.  When I had CK I also took (and still do) melatonin and PEA which helped me a lot with neuroinflammation
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing