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Author Topic: live chat  (Read 11530 times)

becknell

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live chat
« on: October 04, 2005, 07:50:50 pm »
I enjoy coming to this site and have met so many great people. :) One thing that I wish this site had was a live chat. Sometimes I don't have a specific question; I just feel like chatting with other AN patients and family members. When I had a different health issue some years ago I visited a live chat site all the time to talk about those issues. I just thought I would throw that out there and see what others think. Jennifer
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Sheryl

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Re: live chat
« Reply #1 on: October 04, 2005, 08:15:11 pm »
Great idea!!  I'm for it.
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

GM

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Re: live chat
« Reply #2 on: October 05, 2005, 05:54:24 am »
The idea of a chat room has been suggested to this site before...but they do seem to be slow on suggestions.  I had also suggested for them to put a link on the home page for this forum (under treatment options), for those that are "watching and waiting" I received an email that they thought it was a good idea...but nothings happened.   

Anyway...  if you go to this Yahoo group:

http://health.groups.yahoo.com/group/Acoustic_Neuroma_Awareness/

There is a chat option.  you'll probably have to coordinate a chat for the first few times before people do it on a regular basis.  Good bunch there, I've been a member for a while.  There are "surgery", "radiation", and "watch and wait" types there...

GM
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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

wind6

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Re: live chat
« Reply #3 on: October 05, 2005, 07:14:26 pm »
I think this is a great idea too...I live alone so there are many nights that I just plain feel lonely and would enjoy people to chat with.
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2.5cm x 3.1cm facial nerve neuroma
removed 8-2-2005(retrosigmoid)
St.Johns Hospital-Springfield,Illinois
Dr.Michael McIlhany and Dr.Carol Bauer
Wait n' watch mode for 8 years.
Gamma Knife at Northwestern Memorial Hospital. Chicago,IL. Dr. James P. Chandler. July 10, 2013.

DeniseSmith

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Re: live chat
« Reply #4 on: October 07, 2005, 08:32:06 am »
I think its a GREAT idea!!!!
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prittdgoat

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Re: live chat
« Reply #5 on: October 07, 2005, 03:09:17 pm »
I've been wondering why we don't have a live chat room?  All we need is either msn or aol instant message and creat our own chat room .  Both are free. 
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lee

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Re: live chat
« Reply #6 on: July 09, 2006, 07:34:51 pm »
i have aol and msn and am wanting ot chat w/ anyone w/ an acoustic neruoma - email or im me
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lee
2x3mm an
symptoms:dizziness/dull headache/bell's (4 wks)subsided
steriods/waiting/another mri 8/31/06

Jeanlea

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Re: live chat
« Reply #7 on: July 09, 2006, 08:58:14 pm »
I am also interested in live chat.  I have msn and yahoo.  If you are interested email me.  jeanlea2002@yahoo.com

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
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matti

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Re: live chat
« Reply #8 on: July 09, 2006, 09:58:30 pm »
I know it was suggested to this site before, I think it is a great idea.  I have participated in other health sites that have live chat and loved it.

Cheryl
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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Joef

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Re: live chat
« Reply #9 on: September 03, 2006, 06:49:36 am »
chat in my http://www.frappr.com/AcousticNeuroma  just started working (it would not work for a long time) .. has anyone seen this work ?
« Last Edit: September 03, 2006, 06:52:09 am by Joef »
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

ppearl214

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Re: live chat
« Reply #10 on: September 03, 2006, 07:51:56 am »
didn't know about frappr, Joe...thanks.  Cheeky Bloke and I save money by usinig Skype as well. Free download, free voice and has typing/chat as well... can do conference on it as well (as well as Yahoo)
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Joef

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Re: live chat
« Reply #11 on: September 03, 2006, 08:21:07 am »

its does not work thu my VPN to work ... so I assume it wont work at work ... just as well, I dont want to start chatting at work anyway! .. or do I  ::)
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

Gennysmom

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Re: live chat
« Reply #12 on: September 03, 2006, 08:24:51 am »
I've noticed it on frappr, but am the only one there whenever I go.  I think it would be a great idea to coordinate days/times to start.   I'm sure if someone got it going, and we talked about it on here, that would draw others as well.  Thanks again, Joe, for getting the frappr going!
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3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
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Captain Deb

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Re: live chat
« Reply #13 on: September 03, 2006, 04:38:14 pm »
Totally awesome idea!!! A group of us already do an email chat  sort of, but the idea of a specific time and the ability of others to jump right in is a GREAT idea.
Capt Deb 8)
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
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Joef

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Re: live chat
« Reply #14 on: September 03, 2006, 07:43:34 pm »
someone pick a time ... I pick sometime in the PM
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital
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