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Author Topic: Finally received the ANA newsletter!  (Read 10583 times)

lori67

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Re: Finally received the ANA newsletter!
« Reply #15 on: September 24, 2008, 04:03:02 pm »
Ah, figures... they always go for the blondes..... :D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Finally received the ANA newsletter!
« Reply #16 on: September 24, 2008, 04:15:41 pm »
Jan & Lori~
Well, I hope that I am a FOD, but I guess there are perks to being the "sweet, innocent" sister...
I'll just let you wonder where I got it...

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #17 on: September 24, 2008, 07:29:46 pm »
K -

I might not be the "sweet, innocent" sister, but I'm betting I read David's story long before you did.

Trumped ya!  :D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Finally received the ANA newsletter!
« Reply #18 on: September 24, 2008, 07:36:00 pm »
jan-
I am sure you did & probably NOT the "short" version either!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

LADavid

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Re: Finally received the ANA newsletter!
« Reply #19 on: September 24, 2008, 09:11:53 pm »
Jan's right.  She did see the story first.  But not the long version.  I don't even know where that is anymore.  There was one thing that had to be unfortunately left out -- my encounter with the MRI Tube o' Gloom.  Probably a good thing -- it would have scared too many away.
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #20 on: September 25, 2008, 08:32:59 am »
David -

I just love it when I'm right  ;) LOL

The MRI Tube o'Gloom sounds very sinister - I'm not sure if I'd like to read about it or not. 

BTW, put me on the list for AN Jeopardy with you and Lori - sounds like lots of fun  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Finally received the ANA newsletter!
« Reply #21 on: September 25, 2008, 09:17:57 am »
I have to warn you, I happen to have a head full of useless knowledge, so I am pretty good at Jeopardy!  Something's gotta be in there, right?

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #22 on: September 25, 2008, 05:18:01 pm »
Hey, got a birthday present from the ANA today - my newsletter finally arrived !!!!  ;D

David -

you ARE a good-looking guy both pre and post op  ;) and I enjoyed reading your article again.

I also liked the letters - especially the one by Francesco; very well written.

Now I'm looking forward to my December newsletter so I can sign up for the symposium  8)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Finally received the ANA newsletter!
« Reply #23 on: September 25, 2008, 08:23:05 pm »
I guess I'll have to wait until my birthday to get my newsletter.  I hope I get the December issue before next August.

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

NL

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Re: Finally received the ANA newsletter!
« Reply #24 on: September 28, 2008, 03:39:17 am »
Though I haven't yet received my newsletter through the mail, I did have the pleasure of meeting with Lainie and David for coffee last week, so I was finally able to take a look at the issue everyone's been talking about.

Lainie's letter, "Coping with the Psychological Impact of AN," and David's story, "A New Life, A New Adventure" were not only published in the same issue, but also on the same page! (Photo-op!)



Thanks David and Lainie, for sharing your stories with the rest of your AN family.
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #25 on: September 28, 2008, 08:42:59 am »
Wow!  Beautiful picture - you guys look great!  ;D

Thanks for sharing it.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

cindyj

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Re: Finally received the ANA newsletter!
« Reply #26 on: September 28, 2008, 09:54:39 am »
Another great photo from LA!  Thanks, Nancy.  Can't wait to meet ya'll next month!

Lori, there's the article.  Can you read it?

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #27 on: September 28, 2008, 11:52:05 am »
Quote from: cindyj on September 28, 2008, 09:54:39 am
Lori, there's the article.  Can you read it?

Cute, Cindy  ;D

I guess Lori will have to get out her magnifying glass for this one! 

Maybe her newsletter came while she was in the hospital.  It will give her some reading material while she recovers.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Captain Deb

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Re: Finally received the ANA newsletter!
« Reply #28 on: September 28, 2008, 12:46:45 pm »
I got my newsletter this past weekend--what a great article--the PBW finally made the ANA newsletter--we're famous, you scallies and wenches!

Thanks, David. I'm glad we could give you a little vicarious vaycay during a dark time.  I could really relate to seeing a career slipping away as I have watched my art career slip away as well. Maybe you have a new career as a writer in the works. The article really touched on the emotional side on what its like to go through this loss.

Big Hugs,

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

yardtick

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Re: Finally received the ANA newsletter!
« Reply #29 on: September 28, 2008, 04:56:00 pm »
David & Lainie,

First in print in the Notes and now in pictures on the forum.  WOW!!!  You two really look great!  What an inspiration to the rest of us! 

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games
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