Author Topic: Non AN Related Treatment Good Thoughts Please  (Read 7188 times)

Soundy

  • Hero Member
  • *****
  • Posts: 1329
  • prophetic picture done by my 5 year old, June'04
Non AN Related Treatment Good Thoughts Please
« on: January 01, 2009, 07:29:41 pm »
a couple weeks ago I had my annual maogram... didn't give it much thought... first report said possible
calcium deposits in right side ...second mamogram with different angles says cancer... tomorrow lumpectomy
and biopsy to see what is up... for now I am tabling headache appointments ... have to conserve dollars in
health savings account to fight this if it comes back bad ... with our insurance so screwy and not paying much
of anything have to watch all the pennies in there... and we just rolled over to zero in our deductable and out
of pocket  >:( ...not how I wanted to start my New Year ...

Please send good thoughts ... I need them...I think I am about out of steam to deal with anything else..
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Non AN Related Treatment Good Thoughts Please
« Reply #1 on: January 01, 2009, 08:38:52 pm »
Soundy~
Sorry sounds so inadequate for what you are dealing with, but I don't know what else to put.  You will definitely be in my thoughts and prayers.  I know you will keep us posted on what you find out.

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Brendalu

  • Hero Member
  • *****
  • Posts: 1286
  • Smile..it makes everyone wonder what you are up to
Re: Non AN Related Treatment Good Thoughts Please
« Reply #2 on: January 01, 2009, 09:02:36 pm »
Good thoughts and many prayers coming your way, Soundy!  Keep us posted.  We care.
Hugs,
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: Non AN Related Treatment Good Thoughts Please
« Reply #3 on: January 01, 2009, 09:59:56 pm »
Soundy,
You seem to be such a strong person; I know you'll be able to handle what comes your way.  I'm thinking of you.
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Non AN Related Treatment Good Thoughts Please
« Reply #4 on: January 02, 2009, 12:14:27 am »
Soundy -

sorry to hear this.

As Marci said, you seem to be such a strong person - you've been through so much in your life - you can handle this too.

Add me to the list of people thinking of, and praying for, you.

Good luck and please let us know how things turn out.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Non AN Related Treatment Good Thoughts Please
« Reply #5 on: January 02, 2009, 10:06:15 am »
Soundy,

I'm so sorry you may have yet another serious health problem to face,  I sincerely hope this turns out to be nothing to worry about.  You can count me in as sending my prayers for good news your way.

Best wishes,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: Non AN Related Treatment Good Thoughts Please
« Reply #6 on: January 02, 2009, 02:11:37 pm »
Best wishes to you, Soundy and a big hug from me, too.  Hang in there, kiddo. 

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

GRACE1

  • Full Member
  • ***
  • Posts: 249
Re: Non AN Related Treatment Good Thoughts Please
« Reply #7 on: January 02, 2009, 02:23:02 pm »
My thoughts and prayers are with you.

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

Captain Deb

  • Hero Member
  • *****
  • Posts: 3316
  • Phearless Phyll and Captain Deb!
    • Captain Deb
Re: Non AN Related Treatment Good Thoughts Please
« Reply #8 on: January 03, 2009, 01:11:33 pm »
Soundy,
Big cyber (((((((HUG))))))))

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: Non AN Related Treatment Good Thoughts Please
« Reply #9 on: January 03, 2009, 01:40:13 pm »
Soundy:

I was sorry to learn of this latest medical mountain you may have to climb.  I hope and will pray that this comes to nothing.  You deserve a break! 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Soundy

  • Hero Member
  • *****
  • Posts: 1329
  • prophetic picture done by my 5 year old, June'04
Re: Non AN Related Treatment Good Thoughts Please
« Reply #10 on: January 06, 2009, 04:53:44 pm »
Still no word ...should know something Thursday or Friday...

Thanks for thoughts prayers and well wishes... I am almost emotionally drained and can use all the good
thoughts I can get ... best thing about this place is the feeling I am not alone that I sometimes get ...
even though this is not AN related it gave me a safe place to be scared and reach out ... I try not to
freak out in front of my family ... they think I am indestructible and can't let them down...which may be
some of my problem...

Will keep you all post when I learn something ...hoping it is nothing so I can get on with my headache fight ...
can't do both at same time ...


On a happier note ... tomorrow I will be getting a new grandbaby... not due until the 16 and they have been
holding her birth off for almost 2 months... DILs BP is up so they stuck her in hospital this afternoon and will
induce her in the morning ... this is their first...

new daddy has to have surgery on his shoulder the next day and isn't happy about that... it has been canceled twice
because DIL went into hospital in November and then because he had the flu... they told him he had to go on
and get it done or they could drop the case if he cancelled again...
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: Non AN Related Treatment Good Thoughts Please
« Reply #11 on: January 06, 2009, 04:58:28 pm »
Soundy,
Timing is everything, isn't it?  Congrats on your almost-here grandbaby.  Thinking of you this week.
M
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

CROOKEDSMILE

  • Sr. Member
  • ****
  • Posts: 376
Re: Non AN Related Treatment Good Thoughts Please
« Reply #12 on: January 06, 2009, 05:08:28 pm »
don't know your religious affiliation nor is it any of my business but one thought that always helps me to cope is remembering that God never gives us more than we can handle and he must think that you are ONE STRONG LADY. I sometimes want to scream out........OKAY, THAT's EnoUGH! Your inner strength and the love of your family will see you through this. Congrats on the new baby...how exciting. I pray for the best but if it is cancer do know that the cure rate is very good when caught early. Try to think positive and hopefully it will be good news.
Angie

jerseygirl

  • Hero Member
  • *****
  • Posts: 801
Re: Non AN Related Treatment Good Thoughts Please
« Reply #13 on: January 06, 2009, 06:48:53 pm »
Soundy,

Hope the biopsy shows nothing. You have too much to deal with!

            Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
Re: Non AN Related Treatment Good Thoughts Please
« Reply #14 on: January 06, 2009, 10:37:58 pm »
Hi Soundy,

I have lots of calcifications, too. A technician once described me as having "busy breasts." I have gone through many repeat mammograms, ultrasounds, and now yearly MRIs since my mother was treated for breast cancer two years ago. I'm due for the whole rigmarole again in February. My husband works for a medical group, and they have digital mammography now.

I pray that the iffy spot is just some busy calcifications, but I also understand how scary this all is. Take extra special care of yourself.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13