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Author Topic: Day 9 in my favorite place in the world  (Read 5821 times)

NancyMc

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Day 9 in my favorite place in the world
« on: April 17, 2009, 01:40:23 pm »


Squam Lake
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

CROOKEDSMILE

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Re: Day 9 in my favorite place in the world
« Reply #1 on: April 17, 2009, 03:47:14 pm »
ahhhhhhhhhhhh. Reminds me of our summer place in the Upper Peninsula (Michigan). Such solitude.....Great place to heal. Glad you are doing so well. By the way........about the glass of wine and steroids...moderation is the key as both the alcohol and the steroids are metabolized by the liver.
Angie
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EJTampa

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Re: Day 9 in my favorite place in the world
« Reply #2 on: April 17, 2009, 03:58:05 pm »
I'm packing up my fishing gear, hitchin' up the bass boat, and heading north!
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Kathy M

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Re: Day 9 in my favorite place in the world
« Reply #3 on: April 17, 2009, 04:15:51 pm »
Wow, Nancy!  It is beautiful.   Thanks for sharing that...day 9 - unbelievable!!!!!!!!!!!!!!!!!!!  You are awesome!

Kathy
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

sgerrard

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Re: Day 9 in my favorite place in the world
« Reply #4 on: April 17, 2009, 06:33:26 pm »
Been there, done that.  ;D

It looks even better than I remember it from childhood. What a brilliant blue day!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

stoneaxe

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Re: Day 9 in my favorite place in the world
« Reply #5 on: April 17, 2009, 06:55:22 pm »
Awesome....if that doesn't promote healing I don't know what will.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

cindyj

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Re: Day 9 in my favorite place in the world
« Reply #6 on: April 17, 2009, 07:58:56 pm »
Quote from: stoneaxe on April 17, 2009, 06:55:22 pm
Awesome....if that doesn't promote healing I don't know what will.

So true!

That is awesome, Nancy!  Great for the pre-posties (and some posties, too) to see life after treatment...and so soon, too!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Keri

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Re: Day 9 in my favorite place in the world
« Reply #7 on: April 17, 2009, 09:05:37 pm »
so is this what we'll do after luncheon on sunday? very nice!
keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

tenai98

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Re: Day 9 in my favorite place in the world
« Reply #8 on: April 18, 2009, 12:29:00 am »
beautiful pic. I live on the water and love the solitude. Altho many noisey geese but nice to hear...I cant wait til it warms up and get out fishing even if only from my dock.    ;D
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

msmaggie

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Re: Day 9 in my favorite place in the world
« Reply #9 on: April 18, 2009, 08:09:20 am »
Wow!  I'm so jealous!  It looks like a sparkling day, and it had to make you feel great to be out and about.  Glad you are feeling so well!
Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

anissa

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Re: Day 9 in my favorite place in the world
« Reply #10 on: April 18, 2009, 08:43:02 am »
Wow...WOW!  So beautiful!  Good for you!! 
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

SML

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Re: Day 9 in my favorite place in the world
« Reply #11 on: April 18, 2009, 09:02:37 am »
Truly amazing. :)

Scarlett
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

nancyann

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Re: Day 9 in my favorite place in the world
« Reply #12 on: April 18, 2009, 09:26:14 am »
Wish I was paddling with you !   Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

NancyMc

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Re: Day 9 in my favorite place in the world
« Reply #13 on: April 18, 2009, 09:42:27 am »
Since so many of you are fishermen and women on this site . . .  explain this, please.  For the second time in a year, we saw a large bass swimming upside down, not in good form, mind you, but managing to maneuver around slowly.  Is this part of the dying process?  It seemed rather bloated around the middle (I could relate yesterday, but thanks to Miralax, there will be room for the apple dumpling tomorrow!).
Also viewed . . . Great Blue heron, merganzer, and painted turtle on our little paddle.
Jo, Not really Canada goose habitat here for some reason, too many mountains?  But we do have snapping turtles!  Watch your toes.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

leapyrtwins

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Re: Day 9 in my favorite place in the world
« Reply #14 on: April 18, 2009, 10:48:00 am »
For a moment there when I read the subject line I thought you were going to say Disney World.

Kind of like a take off on that commercial "Nancy McDonald, you've just survived AN surgery and are doing incredibly.  What are you going to do next ??"   :D

Beautiful picture.  And very impressive that your balance is good enough to keep the boat upright!

Congrats!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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