Author Topic: AN Book ...  (Read 22706 times)

Larry

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Re: AN Book ...
« Reply #75 on: July 31, 2008, 11:01:37 pm »
Scott,

I should have mine ready over the weekend. I have written it, just want to review it.Looking back at Eve's post in june, my story will come across rather bitter towards the medico's and I think it's worth telling coz its true. Our introduction to the book should, amongst other issues, identify to people that "the process" is very different for everyone. there are good outcomes and there are not so good ones.

cheers


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

msuscottie

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Re: AN Book ...
« Reply #76 on: August 01, 2008, 07:27:31 am »
Yeah, we'll definitly have some sort of introduction. My story isnt all happy/cheery either. About halfway through I was like, "Geez, I need to lighten this up a bit."  ;D

Kaybo

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Re: AN Book ...
« Reply #77 on: August 01, 2008, 07:48:43 am »
I think I will be the LAST writer to get my story done - I haven't even started!!  Once I get going, though, I think I will be fine.  We are just traveling so much this summer and keeping up with 3 girlies is keeping me hopping (not to mention all the time I have spent on the phone about my DSL!).

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: AN Book ...
« Reply #78 on: August 01, 2008, 07:51:54 am »
Kaybo -

have no fear - I'll be right up there with you.

Haven't started yet, but I do have good intentions (too bad that doesn't count!)  ;)

My internet connection crapped out last night, right while I was trying to post a reply to Jimbo - so I feel your pain about the DSL line.  I'm thankful my connection is working this morning.  I don't know why it is - but I'm just going to go with it; no questions asked.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

irene

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Re: AN Book ...
« Reply #79 on: August 07, 2008, 10:50:02 pm »
Hi every one....
A Possilble title could be "But They  Told Us It's Not REALLY A Brain Tumor!!"
irene

Larry

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Re: AN Book ...
« Reply #80 on: August 19, 2008, 11:39:21 pm »
Well i still haven't dotted the i's or crossed the t's yet. i will do very very soon - still battling the headache.

As for our name, i think something short and simple.

i can think of some silly ones but nothing very good.

Oh with the intro, do you think we should have some facts, not opinions. like the different surgery types, the different radiation treatments, wait and watch, symptoms, post treatment issues etc or would that take too much away from the "personality" of the writings.

Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

HeadCase2

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Re: AN Book ...
« Reply #81 on: August 20, 2008, 07:18:25 am »
Potential titles;
 "It Really is All in My Head"
 "Accoutic Neuroma: Patient's Stories"
 "What?"
 "HeadStrong"

Regards,
  Rob
« Last Edit: August 20, 2008, 12:01:41 pm by HeadCase2 »
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

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Jim Scott

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Re: AN Book ...
« Reply #82 on: August 20, 2008, 01:45:13 pm »
Scott:

I hate to admit this but I haven't even started my story - and I usually hate procrastination!  Things have been a bit busy for me and what time I can spare for the internet I spend playing moderator and contributing to the forums.  However, I really want to share my AN experience and have committed to do so, and I will honor that commitment.  I realize this isn't a competition but I hope my story is acceptable, as the level of writing so far has been excellent.  I guess there is only one way to find out!

I'm going on vacation (Disney World) Aug. 23rd to the 31st but will set aside time to write when I return, even if I have to stop posting on the AN site for a day or two.  I'm sure it'll survive without my contributions.  Meanwhile, I commend those who've already submitted their stories and I hope to join their ranks soon or Soon.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

bre2you

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Re: AN Book ...
« Reply #83 on: August 20, 2008, 04:31:28 pm »
Scott,
Do you need any more chapters written?  If so, I'd be willing to share my story.  I was misdiagnosed/blwn off for over a year before I was even diagnosed.  Once diagnosed, I had surgery within three months and it has been quite a journey for me.  If you could use another chapter let me know and I will start writing.  Do you have any target dates for story submissions. 

Bridget
Bridget
2.8cm AN removed July 14, 2008
translab; SSD
Michigan Ear Institute
Dr. Dennis Bojrab --- Dr. Daniel Pieper

leapyrtwins

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Re: AN Book ...
« Reply #84 on: August 20, 2008, 04:31:41 pm »
Jim -

I'm with you - still haven't even started my story - just too darned busy lately  ::)

I do, however, hope to soon.

It's also on my to do list to contact Judy V @ the ANA about a possible introduction - I haven't forgotten.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

MAlegant

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Re: AN Book ...
« Reply #85 on: August 20, 2008, 06:20:22 pm »
This is my first post to this thread, though I've been reading it.  How about "There's no such thing as a benign brain tumor"
Best,
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

leapyrtwins

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Re: AN Book ...
« Reply #86 on: August 20, 2008, 08:25:22 pm »
This is my first post to this thread, though I've been reading it.  How about "There's no such thing as a benign brain tumor"


Sorry, I don't get it  ???  and I'm big on sarcasm.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

MAlegant

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Re: AN Book ...
« Reply #87 on: August 21, 2008, 03:32:30 pm »
For a book title.  You know, even though it's benign, it's still not good.  Ok well if I have to explain it then it's definitely not a good title. LOL.
M
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

leapyrtwins

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Re: AN Book ...
« Reply #88 on: August 21, 2008, 04:27:23 pm »
Sorry.  I took your title to mean quite literally that there IS no such thing as a benign brain tumor - and ANs are 99.9% benign so I just didn't get it  ???

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: AN Book ...
« Reply #89 on: August 21, 2008, 06:47:43 pm »
You'll have to excuse Jan - you know those analytical accountant-types!   :D

I'm working on my revisions....ugh...thank God for computers - I would have wasted a whole rainforest of trees with all the paper I would have used up by now!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.