Author Topic: New York Area ANers  (Read 8921 times)

Debbi

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New York Area ANers
« on: December 11, 2008, 10:34:00 am »
Wendysig and I want to try to have a lunch with fellow ANers from the NY/NJ/CT area in January.  We've tentatively picked the date of Saturday, Jan 10 to meet for lunch.  We last got together in the summer, just a week before Wendy's surgery, and had a great time.  Hoping more folks can join us this time.

Wendy and I will pick a restaurant in mid-town, something walkable from Penn Station, Grand Central or Port Authority.

So, who's in????  Let's start some momentum for this!!

Debbi :)

Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jerseygirl

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Re: New York Area ANers
« Reply #1 on: December 11, 2008, 10:42:28 am »
I am in! The date works for me! Can't wait to see you all!


              Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

JerseyGirl2

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Re: New York Area ANers
« Reply #2 on: December 11, 2008, 10:51:27 am »
Please count me in, too! I can't think of a better way to celebrate my "one-year-and-a-day" AN surgery anniversary date than meeting up with fellow ANers. Let's hope for 60-degree weather (like yesterday) instead of rainy 40s (like today) for January 10th.

Thanks to Debbi and Wendy for organizing this.

Catherine (JerseyGirl2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

jtd71465

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Re: New York Area ANers
« Reply #3 on: December 11, 2008, 06:50:09 pm »
I'm in and I'll let Mike know.  Someone will need to buy me a drink, that day will mark my two year anniversary.



Joe-

« Last Edit: December 11, 2008, 07:39:21 pm by jtd71465 »
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

wendysig

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Re: New York Area ANers
« Reply #4 on: December 11, 2008, 08:22:18 pm »
Hi all,

Wow!  This is a great response so far -- it will be great to see Debbi Joe and Eve and meet Catherine and Mike if he can come.  Joe - I'll be happy to buy you a drink!  It would be also great if we can get a few more people to join in the post-holiday fun!

Cheers!
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Mickey

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Re: New York Area ANers
« Reply #5 on: December 11, 2008, 09:08:45 pm »
Hi Debbi! This is Mike from ANANJ. I heard from Joe tonight and was very happy to hear about this get together. I`ll gladly be there! Please keep me posted on the details. Hope all is well with you, Mickey

Debbi

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Re: New York Area ANers
« Reply #6 on: December 12, 2008, 12:22:08 pm »
Yay!  Mi9ckey- haven't heard from you in ages!  Good to "see" you hear. 

I also PMd MaryMomof3 to see if she can join us.  Will reach out to a couple of other local ANers I know, too.  And, now, we have an offical "cause" - Joe's 2 year anniversary!!!  Yahoo!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

nteeman

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Re: New York Area ANers
« Reply #7 on: December 31, 2008, 10:38:13 am »
I will try to join the gathering--hope you pick someplace that has some vegitarian options. Near Penn Station is good for me.

Neal
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

wcrimi

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Re: New York Area ANers
« Reply #8 on: December 31, 2008, 12:37:45 pm »
I will try to join you all, but I often work on Saturdays.  I'm on a very light work schedule though. So perhaps I'll be off that day. Wayne
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

edhayes

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Re: New York Area ANers
« Reply #9 on: January 01, 2009, 12:22:55 pm »
have you selected a venue yet?
I am having GK on the 8th but maybe just maybe I will be able to come to the get-together.
I live on Long Island.
« Last Edit: January 01, 2009, 12:24:33 pm by edhayes »

JerseyGirl2

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Re: New York Area ANers
« Reply #10 on: January 01, 2009, 01:29:29 pm »
Ed,

I hope you'll be able to join the NY-area group on January 10! I think that Debbi and Wendy are in the process of finalizing some details, so more information should be forthcoming. Best wishes as you prepare for your GK procedure.

Catherine (JerseyGirl2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

MAlegant

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Re: New York Area ANers
« Reply #11 on: January 01, 2009, 10:01:45 pm »
Ok, pictures please??

3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Debbi

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Re: New York Area ANers
« Reply #12 on: January 02, 2009, 12:50:43 pm »
Hi All-

Weather permitting, we are ON for next Saturday.  Wendy and I are just finalizing a location, and yes, we'll make sure their are vegetarian options (maybe not total vegan, though).  Nancy from NYC is also coming.  I will PM everyone with my cell phone number so you can call me Saturday if you have any change in plans.  So far, here's where we are:

Debbi (plus Willie)
Wendy
Joe D
Cetherine (JerseyGirl2)
Eve (JerseyGirl)
Mike I (Mickey)
Wayne (hopefully?)
Ed (hopefully - good luck on the 8th!)
Neal
Nancy

Am I missing anyone?  Can you let me know if you're bringing friend/spouse?  As soon as we finalize restaurant, I'll call to have them reserve a table, so rough head count would be great.

Happy New Year, all!  Can't wait to see everyone!

Debbi (and Wendy)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jtd71465

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Re: New York Area ANers
« Reply #13 on: January 03, 2009, 10:33:03 am »
I'm still in for Saturday but flying solo, see you then.


Joe-
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

Debbi

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Re: New York Area ANers
« Reply #14 on: January 03, 2009, 10:43:56 am »
Hi Gang-

Okay, I made a reservation at Brendan's Irish Pub under my name (Debbi) for noon.  I made it for approximately 10 and will firm it up the day prior.  They don't have a full menu, but have a nice brunch menu priced at $16 and it accomodates herbivores as well as carnivores!

Address:

42 West 35th Street (Between 5th and 6th)
212-564-5405

Website:  http://www.brendansbar.com/

I've sent you all a PM with my cell phone; let me know if you need me to resend, okay?

BTW, In addition to Joe's 2 year anniversary and Ed's GK, we're also celebrating Wendy's new BAHA abutment, which she is having installed on Monday!! Wahoo!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com