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Author Topic: Stoneaxe's Update  (Read 48811 times)

joebloggs

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Re: Stoneaxe's Update
« Reply #135 on: July 09, 2009, 07:03:30 am »
Good one Bob - you're totally getting there!  How long till you're paddling... THAT is the question!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

MissMolly

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Re: Stoneaxe's Update
« Reply #136 on: July 09, 2009, 07:21:06 am »
Hey Bob,
Glad you are feeling well.  Can't believe you mowed the lawn a few days ago!!  Still woozy here in Merrimack, NH following surgery.  I've had similar eye issues as well, though they seem to be dissipating slowly but surely.  Face is still pretty lopsided. All things considered, I'm happy with my progress as you seem to be with yours.

Hope all is well.

Molly
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

NancyMc

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Re: Stoneaxe's Update
« Reply #137 on: July 09, 2009, 10:01:20 am »
Fantabulous!
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Jim Scott

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Re: Stoneaxe's Update
« Reply #138 on: July 09, 2009, 01:48:11 pm »
Bob ~

Good job!  I always figured you would have a good recovery - and you are. Thanks for the inspiration you give to others.  It's appreciated

Jim. 
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Keri

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Re: Stoneaxe's Update
« Reply #139 on: July 09, 2009, 05:11:47 pm »
Hey Nancy,
Thanks for that adjective...
Good to see you, Bob and JB on here! Bob, I'm so glad recovery's going pretty well and that you're looking forward for hopeful 'clearance' to do the paddling thing soon!
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Tumbleweed

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Re: Stoneaxe's Update
« Reply #140 on: July 11, 2009, 12:17:51 am »
Glad to hear you're recovering quickly, Bob! That's especially terrific that your balance is better than it was before surgery. Think of how great it's going to be when you get out on the water again!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

stoneaxe

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Re: Stoneaxe's Update
« Reply #141 on: July 11, 2009, 10:16:34 pm »
Thanks all....snuck back on the water today. Just a easy 1 mile paddle on flat water with Sue and the family. Big family get together at my sisters house in Falmouth. Brought 4 boards since everyone wanted to go out. Sue wasn't too happy with me but I coated a cotton ball with A&D ointment and stuck it in my ear..put a big waterproof bandage over my ear. Never fell in so it didn't get tested...came close a couple times. Only problem I had was when we turned around back into the wind...I had to paddle with my eyes closed often so that I could close my left eye...talk about a vestibular challenge. If the doc says I'm good to go on Monday I may need to wear a patch while paddling....I'll be the 1st standup pirate.... ;)
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

joebloggs

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Re: Stoneaxe's Update
« Reply #142 on: July 11, 2009, 11:04:45 pm »
That's fantastic Bob!!! So glad you didn't fall in!  It's all onwards and upwards from here!  Yay!!!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

sgerrard

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Re: Stoneaxe's Update
« Reply #143 on: July 12, 2009, 12:25:22 am »
24 days, surgery to paddleboard. Not that anyone is counting. :)

I think going a mile without falling off is an impressive first outing. I'm pretty sure I would not be able to do that. You still have a solid month to gear up for the big event in August. I'm betting you make it.

Congratulations on your recovery, Bob. You are back now.  ;)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

NancyMc

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Re: Stoneaxe's Update
« Reply #144 on: July 12, 2009, 07:33:34 am »
Goggles
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

leapyrtwins

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Re: Stoneaxe's Update
« Reply #145 on: July 12, 2009, 10:13:55 am »
VERY impressive, Bob!  ;D

Keep up the good work!  ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

stoneaxe

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Re: Stoneaxe's Update
« Reply #146 on: July 12, 2009, 11:27:45 am »
Quote from: NancyMc on July 12, 2009, 07:33:34 am
Goggles

Hehe...we thinks alike...we're headed out shopping shortly and goggles are on the list. Eye is bugging me today so I need to be careful. Once I got over the 1st little wobbles my balance was great. I tested it a bit with some quick turns and short sprints and felt really good.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

moe

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Re: Stoneaxe's Update
« Reply #147 on: July 12, 2009, 03:28:49 pm »
AWESOME STONEAXE!
You're the man.
Keep up the good positive work and attitude!
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Kaybo

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Re: Stoneaxe's Update
« Reply #148 on: July 12, 2009, 07:14:09 pm »
WHOO-HOO...but keep listening to your body - it is OK to have a day that is not so great...

K ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

stoneaxe

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Re: Stoneaxe's Update
« Reply #149 on: July 13, 2009, 03:48:43 pm »
Got the official go ahead to get back on the water from Dr. McKenna today....yeehaa! Have to protect the eye and use the cotton ball in my ear for another week. I'm going to try and paddle almost everyday between now and August 8th and I'm going to enter a 1 mile race on August 2nd. I'm feeling great...I drove in to Boston today! Of course I learned to drive there so that isn't as big a feat as it might sound to some... ;D. Now if only the eye/face would recover things would be great. Actually...I'll just settle for being able to tightly close my eye. I'd prefer not to have to wear protection when I get back to surfing.

We brought in two huge apple cakes in to MGH and one to MEEI today to say thanks for the great care. I'm so thankfull for the great skills of my doctors and the extraordinary care I've received from the nurses and staff at both hospitals.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org
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