After having surgery for the removal of an acoustic neuroma in 1977, Ginny resolved that future acoustic neuroma patients should have easy-to-read medical materials about their condition, as well as support and camaraderie from other patients.

With the help of her physician, she contacted eight fellow patients and formed the Acoustic Neuroma Association to provide the very information and support to patients and their families that she was unable to find.

“I am proudest that…acoustic neuroma patients can talk…with others who have walked the same path and hear these magic, glorious words, 'I’ve been there. Tell me about it. Maybe I’ve found something that can help with your problem.’ I didn’t have that opportunity, and I’m glad I’ve provided it for others.”
                                         - Ginny Fickel Ehr

We will be forever grateful for and inspired by her and her lasting legacy. The ANA and the AN community send our deepest condolences to Ginny's family.

Some of the messages we've received at the news of Ginny's passing:

I appreciate what a pioneer she was. She founded a national organization that has helped so many. - Stew

So sad to hear this, wish I could have met her! I'm grateful for all her advocacy for AN patients.  - Marya

So, so sorry to hear of Ginny's death.  What a fantastic person, that I learned so much from.  Truly an inspiration.  So happy that I had the opportunity to know her. I'm sure all the ANA presidents who followed her share my thankfulness for having her guidance and inspiration.  - Agnes

My condolences. Because of her inspiration, our St Louis group had a terrific sharing and caring this past weekend. Without the group, many would feel lost. May her memory be a blessing.  - Robert 

She meant so much to all of us! It was a genuine honor to meet her at the symposium. My very deepest condolences to the staff in the office, and the entire ANA community. Really sad news. Quite the legacy! Her memory is a blessing!  - Phyl 

She was a lovely woman who did so much for so many. Thank you for letting us know. May her memory be a blessing.  - Marla 

For all of us with an AN we owe her a debt of gratitude for her work. Deepest condolences to her family, friends, and loved ones. - Tracey  

I was so sorry to hear about Ginny's passing. What a legacy she has left behind! - Elizabeth