Latest News
Stay up to date on news, events, and other items of interest to our AN community.
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Kelly Stafford, wife of Detroit Lions quarterback Matt Stafford, has been publicly sharing her acoustic neuroma diagnosis and post-surgery experiences. Kelly's honesty about the difficulties that can accompany an AN diagnosis is helping to increase awareness of this rare disease. ANA would like to thank Kelly for sharing her acoustic neuroma journey and wishes her the best of luck with her recovery.
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One of our board members and support group leaders shared this article about brain fog. There are many AN patients who struggle with this both before and after treatment.
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Dear Friend,
I never imagined my life would take a dramatic turn as the result of an acoustic neuroma. Prior to my diagnosis, I realized I could not hear people approach me. I assumed my office phone was not working properly. Eventually, tinnitus became a concern. I attributed this to my blood pressure. Dizziness, I told myself, was the result of fatigue.
I finally visited my doctor to get to the root of my issues. “Maybe,” I thought to myself, “it’s just an ear problem?”
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This story on tinnitus was recently featured on The Today Show. Many in the AN community struggle with tinnitus and it is often one of the first signs people notice on their AN Journey. However, it is a widespread issue that almost all people with hearing loss deal with, no matter what the cause.
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Sponsor Post: Complex Case: Rare Cochlear Implantation After Previous NF2 Tumor Removal
This article was reposted with the permission of NYU Langone.
A recent cochlear implantation restored hearing in a patient left profoundly deaf by prior surgery and radiation treatment for neurofibromatosis type 2 (NF2) tumors. The successful cochlear implant (CI) application—rarely performed in such situations—challenges the long-held belief that the device is not a viable option for previously treated NF2 patients.
