ANA Patient Education Event
Hosted by
Saturday, September 20, 2025
Northwestern Memorial Hospital
Conference Room L, 3rd Floor
Prentice Women’s Hospital
250 E Superior St, Chicago, IL 60611
Scheduled Presenters
Specialty Support Groups
Support Groups by State
If you need help finding a group or are interested in starting a group, contact us.
I am an observation patient, how will I know when it's time to seek treatment?
Update My Information
The ANA is dedicated to empowering patients to take an active role in their care by creating impactful programs, funding research, and collaborating with top medical centers and leading healthcare providers - supporting you along every step of your AN journey.
Our commitment includes a robust lineup of support group meetings, webinars, and educational events, plus our quarterly NOTES newsletter, featuring insights on treatment options, regrowth, hearing and balance issues, managing headaches, and navigating the “Watch and Wait” approach.
Please take a moment to ensure we have your most up-to-date information, so you’ll have access to these critical resources.
Washington University Quality of Life Comparison Study
At Washington University, with the support of the Acoustic Neuroma Association, we are conducting a study to compare two different quality of life (QoL) surveys. Our goals are to:
1) to better understand patient experience after a vestibular schwannoma diagnosis and/or treatment,
2) to see how different QoL surveys compare in their measurements of patient experience.
We invite you to participate in this study by completing the online survey.
Your responses will be confidential.
There is no cost or appointment necessary to participate.
To complete the survey, you can enter the web address listed below or scan the QR code using a smartphone camera. The survey takes approximately 20-30 minutes to complete. Questions may appear similar because there is some overlap between the two surveys.
If you would like to learn more about this research study or have questions about your participation, feel free to contact us at (314) 273-1589 and indicate that you are calling about the vestibular schwannoma quality of life study. We greatly appreciate your participation and hope that it will improve future care for patients with vestibular schwannomas.
Sincerely,
Cameron C. Wick, MD
Department of Otolaryngology – Head & Neck Surgery
University Hospitals Cleveland Medical Center