Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

UTSWEvent

ANA Patient Education Event 
Hosted by 

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Saturday, September 20, 2025
Northwestern Memorial Hospital
Conference Room L, 3rd Floor
Prentice Women’s Hospital
250 E Superior St, Chicago, IL 60611

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If you need help finding a group or are interested in starting a group, contact us.

I am an observation patient, how will I know when it's time to seek treatment?

 

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The ANA is dedicated to empowering patients to take an active role in their care by creating impactful programs, funding research, and collaborating with top medical centers and leading healthcare providers - supporting you along every step of your AN journey.

Our commitment includes a robust lineup of support group meetings, webinars, and educational events, plus our quarterly NOTES newsletter, featuring insights on treatment options, regrowth, hearing and balance issues, managing headaches, and navigating the “Watch and Wait” approach. 

Please take a moment to ensure we have your most up-to-date information, so you’ll have access to these critical resources.

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UMiami

Washington University Quality of Life Comparison Study

At Washington University, with the support of the Acoustic Neuroma Association, we are conducting a study to compare two different quality of life (QoL) surveys. Our goals are to:
1) to better understand patient experience after a vestibular schwannoma diagnosis and/or treatment,
2) to see how different QoL surveys compare in their measurements of patient experience.
We invite you to participate in this study by completing the online survey.

Your responses will be confidential.

There is no cost or appointment necessary to participate.

To complete the survey, you can enter the web address listed below or scan the QR code using a smartphone camera. The survey takes approximately 20-30 minutes to complete. Questions may appear similar because there is some overlap between the two surveys.

If you would like to learn more about this research study or have questions about your participation, feel free to contact us at (314) 273-1589 and indicate that you are calling about the vestibular schwannoma quality of life study. We greatly appreciate your participation and hope that it will improve future care for patients with vestibular schwannomas.

https://redcap.link/WashUQOL

WUSTLQR

 

Sincerely,

Cameron C. Wick, MD
Department of Otolaryngology – Head & Neck Surgery
University Hospitals Cleveland Medical Center 

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Join the ANA

An ANA membership provides access to medical partner webinars, a Q&A video library, an extensive list of Peer Mentors, and to NOTES newsletters dating back years. With all this and more, the ANA continues to be the premier resource for AN patients while informing and educating patients and their families. 

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