* Martha | Emory | marthaemory@gmail.com | 205 427-4597 | AL | 1.2 cm | Surgery - Retrosig | 43 | 2023 | | | balance issues; vestibular therapy; headaches; occipital nerve block; fatigue; tinnitus; cognitive issues |
Robin | Batra | rbatra854@gmail.com | 949 878-8801 | AZ | 1.2 cm | Radiation - Gamma Knife | 58 | 2013 | | | tinnitus; facial spasms |
* Margaret | Briggs | glmrchk@gmail.com | 619 500-6141 | AZ | 1.6 cm | Surgery - Translab | 60 | 2015 | | Siemens hearing aid; Bose Hearphones | facial rehab, fatigue, headaches, vestibular therapy, eye issues; eye drops |
* Carol | Franklin | lefsequeen53@gmail.com | 520 722-8340 | AZ | 2.5 cm | Surgery - Retrosig | 47 | 2001 | | Phonak BTE | |
* Tricia | Jennings | azchipster@gmail.com | 520 825-9845 | AZ | 5 cm | Surgery - Retrosig | 48 | 2001 | | Phonak CROS BTE bluetooth | CSF leak; eye closure issues; tear duct plugs; tinnitus; vestibular therapy; facial synkinesis |
* Vinit | Jagdish | vinitjagdish@gmail.com | 360 483-6889 | AZ | 2.8 mm | Surgery - Translab | 46 | 2021 | | | balance issues; dizziness; vestibular rehab; fatigue; headaches; tinnitus |
Tracy | Schwimmer | marcschwim@aol.com | 602 561-1855 | AZ | 2.5 cm | Surgery - Retrosig | | 2012 | | | tumor debulking; headaches; regrowth; facial weakness; facial numbness; facial rehab; CSF leak; CSF leak repair; VP shunt; dry eye |
Tracy | Schwimmer | marcschwim@aol.com | 602 561-1855 | AZ | 2.5 cm | Surgery - Translab | | 2015 | | | tumor debulking; headaches; regrowth; facial weakness; facial numbness; facial rehab; CSF leak; CSF leak repair; VP shunt; dry eye |
Bob | Sterrett | rsterrett1@aol.com | 480 444-8409 | AZ | 1 cm | Observation | | | | Cochlear Implant | tinnitus |
* Kimberly | Ary | kimberly.ary3@gmail.com | 208-390-6361 | CA | 3.4 cm | Surgery - Translab | 22 | 2016 | | | CSF leak; shunt; headaches; fatigue; balance issues; blurry vision; double vision; titanium plate; regrowth |
* Kimberly | Ary | kimberly.ary3@gmail.com | 208-390-6361 | CA | 3.4 cm | Radiation - LINAC | 29 | 2023 | | | CSF leak; shunt; headaches; fatigue; balance issues; blurry vision; double vision; titanium plate; regrowth |
* Hazel | Berman | hazelannb@sbcglobal.net | 916 983-9313 | CA | 2.5 cm | Surgery - Translab | 36 | 1996 | | Baha | 7/12 facial nerve graft; gold eye weight |
* Melissa | Diaz | missdiaz@me.com | 408 416 1145 | CA | 3 cm | Surgery - Translab | 33 | 2011 | Spanish | | balance issues; vestibular therapy; synkinesis; facial neuromuscular rehab; Botox; facial paralysis; dry eye; fatigue post-surgery; depression; mental health therapy; taste issues |
* Christina | Esfehani | esfehani@yahoo.com | 650 575-6990 | CA | 2.3 cm | Radiation - CyberKnife | 27 | 2004 | | | |
* Leah | Keith | leahkeith@me.com | | CA | 2.5 cm | Surgery - Translab | 42 | 2011 | | Oticon Ponto Pro | acupuncture for tinnitus |
* Helen | McHargue | foodsmarts@gmail.com | 760 728-0309 | CA | .5 cm | Radiation - CyberKnife | 66 | 2009 | | Phonak CROS; PocketTalker amplification device | vestibular therapy |
* Helen | McHargue | foodsmarts@gmail.com | 760 728-0309 | CA | .5 cm | Observation | 64 | 2007 | | Phonak CROS; PocketTalker amplification device | vestibular therapy |
* Mark | McLaren | greatscot@earthlink.net | 925 838-8175 | CA | 2 cm | Radiation - CyberKnife | 44 | 2001 | | | |
* Carol | Most Walker | crmost@icloud.com | 415 889-3547 | CA | .9 cm | Radiation - CyberKnife | 68 | 2021 | | | SSD; tinnitus |
* Carol | Most Walker | crmost@icloud.com | 415 889-3547 | CA | .9 cm | Observation | 56 | | | | SSD; tinnitus |
Maggie | Shepard | mizmudpie@gmail.com | 530 859-1149 | CA | 11 mm | Surgery - Retrosig | 66 | 2022 | French | Phonak OTE | balance issues; vestibular therapy; oscillopsia; fatigue; tinnitus |
Cody | Cooper | codyc.co@gmail.com | 720 403-1091 | CO | 3.4 cm | Surgery - Retrosig | 37 | 2016 | | Baha | vestibular therapy; neuromuscular facial rehab; eye weight; eye weight removal; scleral lens; headaches |
Cody | Cooper | codyc.co@gmail.com | 720 403-1091 | CO | 3.4 cm | Surgery - Retrosig | 38 | 2016 | | Baha | vestibular therapy; neuromuscular facial rehab; eye weight; eye weight removal; scleral lens; headaches |
* Virginia | Ferraro | ginnietennis@hotmail.com | 303 469-6391 | CO | .6 cm | Observation | 75 | | | Starkey Genesis Ai 24 RIC-R | tinnitus; balance issues |
* Tara | Paul | tnpaul@comcast.net | 303-868-7181 | CO | 3 cm | Surgery - Translab | 42 | 2020 | | BiCROS | regrowth; facial paralysis; facial rehab; gold weight; scleral lens; tarsorrhaphy; vestibular therapy; fatigue; swallowing issues; taste issues; tinnitus
|
* Tara | Paul | tnpaul@comcast.net | 303-868-7181 | CO | 3 cm | Radiation - Gamma Knife | 42 | 2020 | | BiCROS | regrowth; facial paralysis; facial rehab; gold weight; scleral lens; tarsorrhaphy; vestibular therapy; fatigue; swallowing issues; taste issues; tinnitus
|
Samira | Rajabi | samirajabi@gmail.com | 303 547-0043 | CO | 3.5 cm | Surgery - Translab | 25 | 2012 | Farsi; French | | regrowth; CSF leak; temporary shunts; eye issues; fatigue, headaches; tinnitus; taste issues; dental issues; chronic pain, SSD |
Samira | Rajabi | samirajabi@gmail.com | 303 547-0043 | CO | 3.5 cm | Surgery - Retrosig | 25 | 2012 | Farsi; French | | regrowth; CSF leak; temporary shunts; eye issues; fatigue, headaches; tinnitus; taste issues; dental issues; chronic pain, SSD |
Bonnie | Bostrom | bobon611@aol.com | 860 214-3514 | CT | 1.7 cm | Radiation - Gamma Knife | 65 | 2012 | | | short-term headaches |
Stefanie | Batson-Martin | floridaswimmer14@aol.com | 407 493-7095 | FL | 4 cm | Surgery - Translab | 30 | 2019 | | Oticon Ponto | tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues |
Stefanie | Batson-Martin | floridaswimmer14@aol.com | 407 493-7095 | FL | 4 cm | Radiation - Proton Beam | 31 | 2020 | | Oticon Ponto | tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues |
Stefanie | Batson-Martin | floridaswimmer14@aol.com | 407 493-7095 | FL | 4 cm | Observation | 25 | 2014 | | Oticon Ponto | tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues |
Sherry | Cottrell | sjrmcottrell@gmail.com | 561 704-6733 | FL | 7 mm | Surgery - Translab | 51 | 2021 | | Kanso 2 Cochlear Implant | balance issues; fatigue; headaches; taste/dental; tinnitus |
* Dyanne | Hughes | dyhughes55@comcast.net | 904 624-0940 | FL | 1.9 cm | Surgery - Translab | 53 | 2009 | | BiCROS; Bose noise reducer headphones | facial neuromuscular rehab; synkinesis; Botox; eyelid surgery |
* Chad | Nye | chadnye@gmail.com | 407 496-8357 | FL | 1.5 cm | Surgery - Translab | | 2011 | | BiCROS; Bose noise reducer headphones | |
* Chad | Nye | chadnye@gmail.com | 407 496-8357 | FL | 1.5 cm | Radiation - CyberKnife | | | | BiCROS; Bose noise reducer headphones | |
Robert | Olivo | oedsall4@aol.com | 352 775-6858 | FL | 1.7 cm | Radiation - Gamma Knife | 70 | 2015 | | Phonak Paradise 90 Hearing Aids bilateral | |
David | Puzzo | secgen11@gmail.com | 813 480-5679 | FL | 1.4 cm | Observation | | | | Widex BiCROS | |
* Agnes | Garino | algarino@sbcglobal.net | 314 610-9259 | GA | 1.5 cm | Surgery - Retrosig | 51 | 1996 | | Phonak BiCROS | headaches; headache therapies |
* Meredith | Daly | meredith@meredithdaly.com | 678.525.1941 | GA | 3.6 cm | Surgery - Translab | 52 | 2012 | | Phonak CROS | dry eye; balance issues; dizziness issues |
Jim | Henschel | jim.henschel@gmail.com | 770.840.5470 | GA | 2.5 cm | Surgery - Translab | 60 | 2021 | | Phonak CROS | eye issues; eye weight; facial paralysis; facial nerve reanimation surgery |
Lisa | Trumbull | lisaannetrumbull@gmail.com | 808 253-9522 | HI | .13 cm | Surgery - Translab | 37 | 2017 | | | balance issues; double vision; taste changes |
* Leah | Jenks | leahgjenks@gmail.com | 708 954-7774 | IL | 2 cm | Surgery - Retrosig | 27 | 2022 | | | balance issues; vestibular therapy; tinnitus; SSD; dizziness |
Laurie | Lichko | llichko@comcast.net | 630 390-4470 | IL | 2.9 cm | Surgery - Translab | 61 | 2021 | | BiCROS | SSD; taste issues; tinnitus; balance issues |
Sheri | Settipani | sbwerner@comcast.net | 847 924-5929 | IL | 2 cm | Surgery - Retrosig | 48 | 2016 | | | facial issues; eye issues; maintained hearing |
* Kathy | Gardner | kathyc0407@aol.com | 502 593-9224 | KY | 3.4 cm | Surgery - Translab | 55 | 2013 | | Oticon BiCROS | 12/7 facial transfer; facelifts; browlift; gold weight; gold weight removal; punctal occlusion; vestibular rehab; NF2 |
* Kathy | Gardner | kathyc0407@aol.com | 502 593-9224 | KY | 3.4 cm | Radiation - Gamma Knife | 57 | 2015 | | Oticon BiCROS | 12/7 facial transfer; facelifts; browlift; gold weight; gold weight removal; punctal occlusion; vestibular therapy; NF2 |
Deborah | Polson | decyrs@aol.com | 502 930-3106 | KY | 1.3 cm | Surgery - Retrosig | 59 | 2014 | | | headaches; head pain; neck pain; balance issues; vestibular therapy; tinnitus; titanium mesh; Botox for headaches |
Cathy | Beardslee | cbeardslee2@gmail.com | 305 439-2691 | MA | 3.4 cm | Family Member - Caregiver | 25 | 2023 | | CROS | Headaches; CSF leak repair surgery; SSD; balance issues |
Phyllis | Pearl-Baxter | pbp214@yahoo.com | 781 258-3926 | MA | 1 cm | Radiation - CyberKnife | 44 | 2006 | | Phonak | SSD; migraines; balance issues; tinnitus |
* Miranda | Sacharin | m.sacharin@gmail.com | 925 297-9435 | MA | 3.1 cm | Family Member - Caregiver | 52 | 2009 | | | facial retraining; eye weight; eye ptosis surgery; SSD; balance issues; cognitive issues |
Heather | Homick | hhomick93@gmail.com | 240 508-4282 | MD | 3.7 cm | Surgery - Retrosig | 25 | 2018 | | | SSD; facial reanimation; free muscle transfer; Botox; facial retraining; dry eye; eyelid weight removed; balance issues; vestibular therapy |
Bonny | Lally | bdaymusic@gmail.com | 410 660-1259 | MD | 2.9 cn | Surgery - Retrosig | 60 | 2017 | | CROS | scleral lens; eyelid weight (removed); migraines; vestibular therapy; tinnitus; fatigue; headaches |
* Allison | Shaffer | akgshaffer@gmail.com | 301 706-7900 | MD | .9 cm | Surgery - Middle Fossa | 40 | 2010 | | | |
* Rick | May | rmay726@gmail.com | 734-812-8054 | MI | 2.5 cm | Surgery - Middle Fossa | 52 | 2011 | | Phonak hearing aid | tinnitus; vestibular therapy |
Kenneth | Posner | kennyposner@gmail.com | 248 464-0808 | MI | 1.5 cm | Surgery - Middle Fossa | 51 | 2009 | | | vestibular therapy; migraines; headache therapy, maintained hearing |
Jill | Tolle | jilltolle@yahoo.com | 818 219-5857 | MI | 2.5 cm | Surgery - Translab | 41 | 2013 | | | vestibular therapy; tinnitus |
* Laura | Ferenci | lkferenci@gmail.com | 612 501-2248 | MN | 3 cm | Surgery - Translab | 57 | 2016 | | | balance issues; vestibular therapy; blurry vision; eye surgery; fatigue; tinnitus; taste issues |
Jay | Magrisso | jay.magrisso@gmail.com | 717 586-3275 | MN | 3 cm | Surgery - Retrosig | 39 | 2019 | Italian | | SSD; brain fog; fatigue; balance/dizziness issues; headaches; eye issues |
Nancy | Rhein | nancyrhein@gmail.com | 612-240-0415 | MN | 2 cm | Surgery - Retrosig | 62 | 2016 | | Phonak hearing aid | balance issues; dizziness; vestibular therapy; fatigue; headaches; taste issues |
* Carol | Gardner | carolhgardner@gmail.com | 573 690-3296 | MO | 3.1 cm | Surgery - Translab | | 2020 | | BiCROS | blephoplasty; titanium eyelid weight; facial therapy; Botox; TMJ |
*Phyllis | Trulock | ptru20@yahoo.com | 314-705-0883 | MO | 1.7 cm | Radiation - Gamma Knife | 58 | 2005 | | Transear | Tinnitus; facial issues; facial spasms; SSD |
* Stewart | Binder | marylandterp.888@gmail.com | 919 624-3256 | NC | 2.3 cm | Surgery - Translab | 59 | 2011 | | Med-El Bonebridge | facial neuromuscular rehab; Botox; synkinesis; dry eye; platinum eye weight |
* Lisa | Fisher | lfisher@rubollc.com | 412 996-2386 | NC | 2.5 cm | Surgery - Translab | 33 | 2017 | | | Balance issues; CSF leak; fatigue; dry eye; eye closure issues; eye drops; eye patch; eye tape; facial rehab for synkinesis; Botox; regrowth; dry mouth; dental issues; prescription toothpaste |
* Lisa | Fisher | lfisher@rubollc.com | 412 996-2386 | NC | 1.3 cm | Surgery - Translab | 39 | 2023 | | | Balance issues; CSF leak; fatigue; dry eye; eye closure issues; eye drops; eye patch; eye tape; facial rehab for synkinesis; Botox; regrowth; dry mouth; dental issues; prescription toothpaste |
Kathy | Hill | kjayhill@gmail.com | 336 707-7013 | NC | .8 cm | Surgery - Middle Fossa | 52 | 2017 | | Oticon Baha; Oticon More hearing aid | vestibular therapy; tinnitus; dry eye; facial paralysis |
Neil | Donnenfeld | ndonnenfeld@gmail.com | 617 285-0579 | NH | 1.4 cm | Radiation - Proton Beam | 50 | 2013 | | | tinnitus; hyperacusis; synkinesis |
* Iryna | Mosendz | lutirinas@gmail.com | 609 705-6623 | NJ | 2.3 cm | Surgery - Middle Fossa | 28 | 2017 | Russian;Ukranian | | dry eye; regrowth |
* Iryna | Mosendz | lutirinas@gmail.com | 609 705-6623 | NJ | 2.3 cm | Radiation - Proton Beam | 30 | 2019 | Russian;Ukranian | | dry eye; regrowth |
Mary | Steed | maryellen.steed@gmail.com | 347 551-3486 | NJ | 5 cm | Family Member - Caregiver | 11 | 2021 | | | SSD; dry eye; headaches; facial weakness; speech therapy; occupational therapy; balance issues |
Howard | Waldrop | howardrop@rocketmail.com | 201 818-8977 | NJ | 1 cm | Radiation - Gamma Knife | 50 | 2015 | | Oticon | tinnitus; balance issues |
* Tracey | Collins | tracey.collins6273@gmail.com | 581 382-3283 | NY | 2.5 cm | Surgery - Retrosig | 35 | 2009 | | | |
Scott | Bornholdt | sbornholdt@zoomtown.com | 513 884-7442 | OH | 2.7 cm | Surgery - Retrosig | 52 | 2022 | | Oticon | Fatigue; balance issues; vesibular therapy; tinnitus |
* Sandy | Hadgis | sjhadgis@gmail.com | 440 213-3577 | OH | 5 cm | Surgery - Retrosig | 38 | 2022 | | Oticon Ponto | Double vision; stroke; dizziness; dry eye |
* Sandy | Hadgis | sjhadgis@gmail.com | 440 213-3577 | OH | 5 cm | Surgery - Translab | 38 | 2023 | | Oticon Ponto | Double vision; stroke; dizziness; dry eye |
Erin | Heidrich | erinheidrich@gmail.com | 859 640-1083 | OH | 1.3 mm | Surgery - Middle Fossa | 39 | 2021 | | Osia 2 | Balance issues; dizziness; vestibular therapy; cognitive behavioral therapy for tinnitus |
* Emily | Praeter | elpraeter@gmail.com | 513 265-1350 | OH | 2 cm | Surgery - Middle Fossa | 40 | 2018 | | Phonak CROS | balance issues; dizziness; vestibular therapy; cognitive/neurological issues; fatigue; headaches |
Kate | Roelker | kroelker@hotmail.com | 513 939-5920 | OH | 1.8 cm | Surgery - Middle Fossa | 65 | 2017 | | Hearing aid | eye issues; tinnitus; facial therapy; vertigo; vestibular therapy; maintained hearing; tinnitus |
* Sara | Wasserman | artspeaks10@hotmail.com | 928 301-8781 | OH | 2.5 cm | Family Member - Caregiver | 64 | 2015 | | | SSD; balance issues; dizziness, fatigue |
* Alice | Wedding | aj2mydad@yahoo.com | 513 315-2341 | OH | large | Surgery - Translab | 64 | 2012 | | Baha | tinnitus; vestibular therapy |
David | Noyes | dcnoyes@comcast.net | 503 419-7418 | OR | 3.5cm | Surgery - Retrosig | 35 | 1999 | Spanish | Baha | facial rehab; facial surgery; vestibular therapy; eye weight |
Robert | Bolen | rjbolen@verizon.net | 215 679-5945 | PA | 1.1 cm | Radiation - Gamma Knife | 76 | 2018 | | | SSD; tinnitus |
* Marya | Camilleri | mc.ana.philly@gmail.com | 215 313-0727 | PA | 2.3 cm | Surgery - Retrosig | 42 | 2019 | | | balance issues; dizziness; vestibular therapy; headaches; facial weakness; dry eye; vision therapy; SSD |
Patrick | Fink | pmfink@gmail.com | 412 480-2765 | PA | 2.1 cm | Radiation - Gamma Knife | 28 | 2017 | | | fatigue; tinnitus; headaches |
* Nancy | Graffius | ngraffius@comcast.net | 610 939-9114 | PA | 4 cm | Surgery | 51 | 1994 | | | |
* Elizabeth | Kauermann | idesignepk@gmail.com | 215 357 6321 | PA | 3.2 cm | Surgery - Translab | 60 | 2021 | Hungarian | | oscillopisa; vestibular therapy; tinnitus; cognitive/neurolgoical issues; fatigue; taste issues |
Robert | Vance | bob@vancerenz.com | 814 880-6084 | PA | 1 cm | Radiation - Varian Trilogy | 60 | 2013 | | Signia BiCROS | vestibular therapy; tinnitus |
* Anthony | DiBella | ajd@orgtransitions.com | 401 523-9467 | RI | 1.7 cm; 3.1 cm | Avastin | 71 | 2019 | French; Italian; Spanish | Oticon OPN1 | NF2; tinnitus |
* Anthony | DiBella | ajd@orgtransitions.com | 401 523-9467 | RI | 1.7 cm; 3.1 cm | Observation | 44 | 1992 | French; Italian; Spanish | Oticon OPN1 | NF2; tinnitus |
Ricky | Roberson | rickynumber31@gmail.com | 803 729-4040 | SC | 3.5 cm | Surgery - Translab | 48 | 2017 | | Phonak BiCROS | dizziness |
Lisa | Porisch | lisaporisch@gmail.com | 605 431-5827 | SD | 3 mm | Surgery - Middle Fossa | 46 | 2022 | | | Pre-treatment headaches; balance issues; vestibular therapy; tinnitus; maintained hearing; emotional cognitive issues |
* Lauren | Vaden | tarheelbluesy@gmail.com | 615 232-4929 | TN | 1 cm | Surgery - Translab | 35 | 2019 | | | fatigue; SSD; hemi-facial spasms; facial sensitivity; tinnitus; balance issues |
* Linda | Dorasami | anausa.dfw@gmail.com | 817 244-0615 | TX | 1.6 cm | Surgery - Retrosig | 47 | 1995 | Spanish | | vestibular rehab; headaches; pain management |
* Linda | Dorasami | anausa.dfw@gmail.com | 817 244-0615 | TX | 3 cm | Observation | 66 | 2014 | Spanish | | NF2 |
Katy | Fredericksen | katylf@yahoo.com | 832 585 6346 | TX | 4 cm | Surgery - Retrosig | 19 | 2019 | | | balance issues; vestibular therapy; pre-treatment headaches; facial issues (short-term); dry eye; watch and wait for regrowth |
* Laurie | Reid | lauriegailreid@outlook.com | 713 503-2788 | TX | 10 mm | Surgery - Middle Fossa | 53 | 2020 | | | hearing preserved; balance issues; vestibular prehab; hearing sensitivity; custom ear plugs; fatigue; tinnitus; dry eye |
* Laura | Spence | lauraspencetx@gmail.com | 972 974-1516 | TX | 1.2 cm | Surgery - Middle Fossa | 41 | 2019 | | Oticon Baha | facial Botox for synkinesis; DAO resection; vestibular therapy, severe dry eye; RX eye drops; Scleral lens; balance issues; headaches; fatigue |
* Johnny | Diaz | johnny.diaz@yahoo.com | 904 738-5063 | VA | 2.5 cm | Surgery - Middle Fossa | 39 | 2008 | Spanish | | |
Mary Ann | Mugel | mamugel@gmail.com | 804 551-2928 | VA | 2.1 cm | Radiation - Gamma Knife | 65 | 2019 | | | hydrocephalus; permanent VP shunt; fatigue; tinnitus; diminished hearing; balance issues; dizziness; vestibular therapy |
* Michelle | Nemeth | michelle.f.nemeth@gmail.com | 703 772-7114 | VA | 1.4 cm | Surgery - Middle Fossa | 27 | 2013 | | | maintained hearing |
Mary | Green | marygreen4810@gmail.com | 262 470-4810 | WI | 3.1 cm | Surgery - Retrosig | 50 | 2017 | | CROS | vestibular therapy; speech therapy; synkinesis; facial rehab; Botox; eye issues; dry eye; headaches pre-treatment; hydrocephalus pre-treatment |
* Judy | Jones | jjonescurran539@gmail.com | 414 491-6249 | WI | 2.2 cm | Radiation - CyberKnife | 60 | 2013 | | | trigeminal neuralgia; balance issues; headaches; tinnitus |
* Emily | Truell | anayoungadults@gmail.com | 920 229-5201 | WI | 3 cm | Surgery - Translab | 27 | 2015 | | Oticon Ponto Plus | CSF leak; headaches; tinnitus; balance therapy |
Brian | Vincent | vinbri3@gmail.com | 414 758-0807 | WI | 1.8 cm | Radiation - CyberKnife | 53 | 2016 | | | fatigue; tinnitus; headaches |