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Specialty Support Groups
Caregiver Support Group - Sara Wasserman - (928) 301-8761 - artspeaks10@hotmail.com
Facial Paralysis Support Group - Tara Paul - tnpaul@comcast.net
Headaches (Pre-Treatment) - Ken Posner - (248) 464-0808 - kennyposner@gmail.com
Headaches (Post-Treatment) - Agnes Garino - (314) 821-1905 - algarino@sbcglobal.net
Newly Diagnosed / Pre-Treatment - Chad Nye - (407) 496 - 8357 - chadnye@gmail.com
Young Adults Support Group - Emily Truell - (920) 229-5201 - emily@lacampground.com
Michelle Nemeth - (703) 772-7114 - michelle.f.nemeth@gmail.com
Support Groups by State
We are currently recruiting support group facilitators in the following locations, or contact us today if you would like to start a group in your area.
FL - Ft. Lauderdale
FL - Sarasota
IN - Indianapolis
MA - Boston
MO - Kansas City
PA - Pittsburgh
ALABAMA
MOBILE
Leader: Alan Heffernan
251-621-5665
alanheff@gmail.com
ARIZONA
PHOENIX
Leader: Tracy Denmark Schwimmer
602-561-1855
marcschwim@aol.com
TUCSON
Leader: Tricia Jennings
520-825-9845
azchipster@gmail.com
Leader: Carol Franklin
520-490-5035
lefsequeen53@gmail.com
CALIFORNIA
LOS ANGELES
Leader: Leah Keith
leahkeith@me.com
Leader: Kimberly Ary
kimberly.ary3@gmail.com
PALO ALTO
Leader: Christina Esfehani
650-575-6990
esfehani@yahoo.com
Co-Leader: Mark McLaren
925-838-8175
calpedaler@earthlink.net
SACRAMENTO
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
SAN DIEGO
Leader: Helen McHargue
760-728-0309
foodsmarts@gmail.com
Leader: Margaret Briggs
619-500-6141
glmrchk@gmail.com
Leader: Melissa Diaz
missdiaz@me.com
SAN FRANCISCO-OAKLAND
Leader: Carol Most Walker
415-889-3547
carol@wedrinktea.com
Co-Leader: Thomas Sattler
415-864-0764
tsattler@gmail.com
COLORADO
DENVER
Leader: Ginnie Ferraro
303-469-6391
ginnietennis@hotmail.com
CONNECTICUT
NEW HAVEN
Contact: Kelly Michaud, RN, BSN
kelly.michaud@ynhh.org
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
DC
WASHINGTON, DC
Leader: Allison Shaffer
301-279-9166
akgshaffer@gmail.com
Co-Leader: Michelle Nemeth
703-772-7114
michelle.f.nemeth@gmail.com
FLORIDA
NORTH FLORIDA
Leader: Dyanne Hughes
904-624-0940
dyhughes55@comcast.net
ORLANDO
Leader: Chad Nye
407-496-8357
chadnye@gmail.com
GEORGIA
ATLANTA
Leader: Meredith Daly
678-525-1941
meredith@meredithdaly.com
KENTUCKY
LOUISVILLE
Leader: Kathy Gardner
502-593-9224
kathyc0407@aol.com
LOUISIANA
NEW ORLEANS
Leader: Joan Lemmon
504-261-6490
joanmlemmon@gmail.com
MARYLAND
BALTIMORE
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
MICHIGAN
Leader: Rick May
734-812-8054
rmay726@gmail.com
Meets in W. Bloomfield
MINNESOTA
MINNEAPOLIS-ST. PAUL
Leader: Laura Ferenci
612-501-2248
lkferenci@gmail.com
Leader: Steven Blons
612-925-5926
bodysoul@earthlink.net
MISSOURI
COLUMBIA
Leader: Carol Gardner
573-690-3296
carolhgardner@gmail.com
ST. LOUIS
Leader: Agnes Garino
314-821-1905
algarino@sbcglobal.net
Co-Leader: Phyllis Trulock
314-822-3221
ptru20@yahoo.com
NEW HAMPSHIRE/VERMONT
LEBANON
Contact: Shannon M. Bagley
603-650-8123
shannon.m.bagley@hitchcock.org
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
NEW JERSEY
SOUTH
Leader: Iryna Mosendz
609-705-6623
lutirinas@gmail.com
NEW YORK
ALBANY-MID HUDSON
Leader: Tracey Collins
581-382-3283
Tracey.Collins6273@gmail.com
NEW YORK CITY
Leader: Miranda Warren Sacharin
617-879-0578
m.sacharin@gmail.com
ROCHESTER
Leader: Tom Banach
585-732-4377
tom_banach@hotmail.com
NORTH CAROLINA
Leader: Stewart Binder
919-624-3256
marylandterp.888@gmail.com
Leader: Lisa Fisher
412-996-2386
lfisher@rubollc.com
Meets in Chapel Hill
OHIO
CINCINNATI-DOWNTOWN
Leader: Emily Praeter
513-265-1350
elpraeter@gmail.com
CINCINNATI-WEST CHESTER
Leader: Alice Wedding
513-831-0336
aj2mydad@yahoo.com
NE OHIO
Leader: Pat Gillespie
330-605-7244
cpgillespie@hotmail.com
OREGON
PORTLAND
Leader: David Noyes
503-419-7418
dcnoyes@comcast.net
PENNSYLVANIA
PHILADELPHIA
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
READING
Leader: Nancy Graffius
610-939-9114
ngraffius@comcast.net
RHODE ISLAND (SE NEW ENGLAND)
EAST GREENWICH
Leader: Tony DiBella
401-523-9467
ajd@orgtransitions.com
SOUTH CAROLINA
COLUMBIA
Leader: Ricky Roberson
843-814-2027
rroberson@millsautogroup.com
TENNESSEE
NASHVILLE
Leader: Lauren Vaden
615-232-4929
tarheelbluesy@gmail.com
TEXAS
DALLAS-FT.WORTH
Co-Leader: Linda Dorasami
817-244-0615
anausa.dfw@gmail.com
HOUSTON
Leaders: Shawn and Connie Wilkins
832-458-0236
connie.jo.wilkins@gmail.com
Leader: Mariana Irato
832-474-4090
mariana_irato@yahoo.com
UTAH
SALT LAKE CITY
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
VERMONT/ NEW HAMPSHIRE
LEBANON, NH
Contact: Shannon M. Bagley
603-650-8123
shannon.m.bagley@hitchcock.org
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
VIRGINIA
ROANOKE
Leader: Johnny Diaz
904-738-5063
johnny.diaz@yahoo.com
WASHINGTON
SEATTLE-TACOMA
For more information, contact our Manager of Volunteer Programs at 770-205-8211 or email volunteers@anausa.org
WISCONSIN
GREEN BAY
Leader: Bonnie Simon
920-731-4647
bjs3323@gmail.com
MILWAUKEE
Leader: Judy Jones
414-491-6249
jjonescurran539@gmail.com
- Details
Mark Ruffalo's Story
Award-winning actor and AN patient Mark Ruffalo discusses his acoustic neuroma journey.
- Details
Contact Acoustic Neuroma Association
Acoustic Neuroma Association
2555 Northwinds Parkway
Alpharetta, GA 30009
Connect with the ANA
- Details
Acoustic Neuroma Healthcare Provider List
**If you are an acoustic neuroma medical provider and would like to appear - or have your medical center included - in the listing, click here.
- Details
What is the purpose of this study? The study collects and analyzes ongoing data about how the diagnosis and treatment of an acoustic neuroma affect quality of life and what symptoms or problems most impact quality of life. The goal is to develop recommendations to improve quality of life in people with acoustic neuromas or determine what treatment strategies least negatively impact quality of life.
How is the study being done? The study is being done via an electronic REDCap survey. The questionnaire includes 104 questions relevant to your symptoms and quality of life. Most of the questions require checking a box or rating a symptom on a scale of 1 to 10. Completion of the questionnaire is estimated to take approximately 20 minutes. The first year after you enroll, you will be asked to complete the survey twice.
What are my obligations if I agree to participate? Participants need only to complete the questionnaire to the best of their ability, honestly answering each of the questions as they pertain to how they are feeling at the time of completing the survey. There is no cost to you, and you can withdraw or decline to participate at any time. Your decision to participate does not in any way affect your relationship with the Acoustic Neuroma Association (ANA), and no funding from the ANA is being used to complete this study. Your personal information is never shared.
What if I haven't yet had treatment for my acoustic neuroma or had treatment many years ago? It doesn't matter whether you had treatment a long time ago or which treatment strategy you have had (observation or "wait and scan," radiation, or surgery); we want to know how you are doing, what symptoms you are having, and how they are affecting your quality of life. Even if you haven't yet had any treatment, knowing how the diagnosis has affected you is helpful to the study.
What if I am doing fine and don't have any symptoms or problems related to my acoustic neuroma or its treatment? Even if you are not currently having symptoms or quality-of-life concerns related to acoustic neuroma, your answers and input may still help determine how more people can live symptom-free and enjoy a high quality of life. In this way, your input may help other people.
What if I have other questions? If you questions about the study, email RSTacousticneuromastudy@mayo.edu.
More information about Mayo Clinic research
How do I get started? Simply email RSTacousticneuromastudy@mayo.edu. Include your name and mailing address. Your first survey link will be emailed shortly after you electronically sign a HIPAA Authorization.
Thank you for your interest in our study,
Michael J. Link, M.D.,Professor of Neurosurgery, Mayo Clinic
Matthew L. Carlson, M.D., M.B.A.,Professor of Otolaryngology and Neurosurgery, Mayo Clinic
