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CROSSSD Study: Identifying what is critical and important to measure when evaluating hearing interventions for adults with Single Sided Deafness (SSD)
Nottingham Hearing Biomedical Research Centre
University of Nottingham, UK
Purpose of Study:
The CROSSSD Study group at the Nottingham Hearing Biomedical Research Centre, UK are conducting an international consensus survey aiming to find agreement on what outcomes are critical and important to measure when evaluating interventions for Single-Sided Deafness (SSD). They are interested in opinions from patients diagnosed with SSD as well as expert professionals in the field.
This online survey aims to identify and form agreement on what is most important to measure in research about treatments for Single Sided Deafness (SSD). These most important outcomes will then be included in a Core Outcome Set for SSD. This research is important because it will help to shape and improve future research on treatments for people with SSD.
What do I need to know before I take part?
The CROSSSD study is open to people who have been diagnosed with Single Sided Deafness (SSD) and who have received or considered trying a treatment for your SSD, and it is also open to people with professional experience with SSD (e.g. clinicians, researchers, etc.).
The deadline to participate is November 20, 2019.
If you would like to take part, please visit:
https://delphimanager.liv.ac.uk/CROSSSD/Delphi
To take part you need to register on the study website. When you register, we will ask some questions about you. The data collected from these questions will tell us about the different backgrounds of participants who completed the survey. In turn, this information will help us understand the results. Any information you provide will only ever be reported anonymously and will be grouped with respondents who have a similar background to yourself.
Once you register you will be asked to score a total of 44 outcomes on a 1-9 importance scale. This should take approximately 30 minutes. A similar questionnaire will be re-distributed for completion in a few weeks.
Forming a ‘core set’ of outcomes that are important to both patients and professionals will have applications in guiding the use of outcome measures in clinical trials. Ultimately this will reduce research waste and will improve decision making for hearing aids or auditory implants recommendations for SSD.
If you need more information, please contact
Roulla.Katiri@nottingham.ac.uk.
nottingham.ac.uk/research/groups/hearingsciences/index.aspx
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