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ANA Surveys
In a continuing effort to advance our understanding of acoustic neuroma issues, the Acoustic Neuroma Association conducted surveys of acoustic neuroma patients.
We would like to thank all of you who completed the surveys and sincerely hope you will help us continue our efforts by joining our Patient Registry. This "living database" helps encourage research studies and speeding therapies while rapidly increasing our understanding of the issues surrounding acoustic neuromas.
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Related Links
The Acoustic Neuroma Association provides the following links to assist in your search for information. These links are provided as a convenience only and are not to be considered an endorsement or recommendation by the ANA.
Aphasia:
Balance:
- American Physical Therapy Association, Neurology Section
- Choose PT
- Vestibular Disorders Association (VEDA)
Cognitive and Emotional Issues:
- The American Academy of Clinical Neuropsychology (AACN)
- National Alliance on Mental Illness
- National Institute on Mental Health
- Now Matters Now
- Theravive
Eye Care:
Facial Issues:
Financial Assistance:
- Friends of Man - medical equipment
- Partnership for Prescription Assistance
- Rx Assist
Government Agencies:
- Medicare
- National Institute on Deafness and Other Communication Disorders
- National Institutes of Health on Acoustic Neuroma
- Social Security Disability
Headaches:
Hearing:
- American Cochlear Implant Alliance
- American Tinnitus Association
- American Academy of Audiology
- American Speech-Language-Hearing Association (ASHA)
- Gathering Sound
- Hearing Loss Association of America
- Hyperacusis Network
- Hyperacusis Research
Insurance:
Local Resources:
NF2:
Non-English Resources:
Patient Advocacy:
- Alliance of Claims Assistance Professionals (ACAP)
- Center for Medicare Advocacy, Inc.
- Employment Toolkit (HLAA)
- Medicare Rights Center (MRC)
- National Organization of Social Security Claimants' Representatives (NOSSCR)
- Patient Advocate Foundation (PAF)
Research Studies:
Support:
Transportation:
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Mission, Vision & Values
MISSION
The Acoustic Neuroma Association, the premier resource to the acoustic neuroma community, informs, educates, and supports those affected by acoustic neuroma brain tumors.
VISION
To continually improve the lives of Acoustic Neuroma patients and their families through communication, support, innovation, and partnerships with the medical community.
VALUES
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Respect: to honor the needs and privacy of acoustic neuroma patients
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Professionalism: to maintain high ethical standards at all times
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Objectivity: to remain free of bias in everything we do
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Patient Centricity: to place the patient and their community at the forefront of all ANA efforts
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Annual Financial Reports
Click the links below to view the Acoustic Neuroma Association Annual Reports
2023 ANA Annual Report (pdf) view as flipbook
ANA Form 990 is available on request.
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Board of Directors
Staff
Jim Shea
Chief Executive Officer
Matthew Balte
Manager, Development and Healthcare Partnerships
Suvarna Damodaran
Operations Coordinator
Melanie Hutchins
Manager, Volunteer Programs and Publications
Christina McCurdy
Accounting Coordinator
