Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30041

ANA Peer Mentor Program
One-on-One Support

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First NameLast NameEmailPhoneStateSize at TreatmentTreatment TypeAge at TreatmentTreatment YearAdditional LanguagesHearing DeviceIssues
* MarthaEmorymarthaemory@gmail.com205 427-4597AL1.2 cmSurgery - Retrosig432023balance issues; vestibular therapy; headaches; occipital nerve block; fatigue; tinnitus; cognitive issues
Robin Batrarbatra854@gmail.com949 878-8801AZ1.2 cmRadiation - Gamma Knife582013tinnitus; facial spasms
* Margaret Briggsglmrchk@gmail.com 619 500-6141AZ1.6 cmSurgery - Translab602015Siemens hearing aid; Bose Hearphonesfacial rehab, fatigue, headaches, vestibular therapy, eye issues; eye drops
* Carol Franklinlefsequeen53@gmail.com 520 722-8340 AZ2.5 cmSurgery - Retrosig472001Phonak BTE
* Tricia Jenningsazchipster@gmail.com 520 825-9845AZ5 cmSurgery - Retrosig482001Phonak CROS BTE bluetoothCSF leak; eye closure issues; tear duct plugs; tinnitus; vestibular therapy; facial synkinesis
* VinitJagdishvinitjagdish@gmail.com360 483-6889AZ2.8 mmSurgery - Translab462021balance issues; dizziness; vestibular rehab; fatigue; headaches; tinnitus
Tracy Schwimmermarcschwim@aol.com 602 561-1855AZ2.5 cmSurgery - Retrosig2012tumor debulking; headaches; regrowth; facial weakness; facial numbness; facial rehab; CSF leak; CSF leak repair; VP shunt; dry eye
Tracy Schwimmermarcschwim@aol.com 602 561-1855AZ2.5 cmSurgery - Translab2015tumor debulking; headaches; regrowth; facial weakness; facial numbness; facial rehab; CSF leak; CSF leak repair; VP shunt; dry eye
BobSterrettrsterrett1@aol.com480 444-8409AZ1 cmObservationCochlear Implant tinnitus
* Kimberly Arykimberly.ary3@gmail.com 208-390-6361CA3.4 cmSurgery - Translab222016CSF leak; shunt; headaches; fatigue; balance issues; blurry vision; double vision; titanium plate; regrowth
* Kimberly Arykimberly.ary3@gmail.com 208-390-6361CA3.4 cmRadiation - LINAC292023CSF leak; shunt; headaches; fatigue; balance issues; blurry vision; double vision; titanium plate; regrowth
* Hazel Bermanhazelannb@sbcglobal.net 916 983-9313  CA2.5 cmSurgery - Translab361996Baha7/12 facial nerve graft; gold eye weight
* Melissa Diazmissdiaz@me.com 408 416 1145CA3 cmSurgery - Translab332011Spanishbalance issues; vestibular therapy; synkinesis; facial neuromuscular rehab; Botox; facial paralysis; dry eye; fatigue post-surgery; depression; mental health therapy; taste issues
* Christina Esfehaniesfehani@yahoo.com 650 575-6990 CA2.3 cmRadiation - CyberKnife272004
* Leah Keithleahkeith@me.com CA2.5 cmSurgery - Translab422011Oticon Ponto Proacupuncture for tinnitus
* Helen McHarguefoodsmarts@gmail.com 760 728-0309 CA.5 cmRadiation - CyberKnife662009Phonak CROS; PocketTalker amplification devicevestibular therapy
* Helen McHarguefoodsmarts@gmail.com 760 728-0309 CA.5 cmObservation642007Phonak CROS; PocketTalker amplification devicevestibular therapy
* Mark McLarengreatscot@earthlink.net 925 838-8175 CA2 cmRadiation - CyberKnife442001
* Carol Most Walkercrmost@icloud.com415 889-3547  CA.9 cmRadiation - CyberKnife682021SSD; tinnitus
* Carol Most Walkercrmost@icloud.com415 889-3547  CA.9 cmObservation56SSD; tinnitus
MaggieShepardmizmudpie@gmail.com 530 859-1149CA11 mmSurgery - Retrosig662022French Phonak OTEbalance issues; vestibular therapy; oscillopsia; fatigue; tinnitus
CodyCoopercodyc.co@gmail.com 720 403-1091 CO3.4 cmSurgery - Retrosig372016Bahavestibular therapy; neuromuscular facial rehab; eye weight; eye weight removal; scleral lens; headaches
CodyCoopercodyc.co@gmail.com 720 403-1091 CO3.4 cmSurgery - Retrosig382016Bahavestibular therapy; neuromuscular facial rehab; eye weight; eye weight removal; scleral lens; headaches
* VirginiaFerraroginnietennis@hotmail.com 303 469-6391CO.6 cmObservation75Starkey Genesis Ai 24 RIC-Rtinnitus; balance issues
* Tara Paultnpaul@comcast.net 303-868-7181CO3 cmSurgery - Translab422020BiCROSregrowth; facial paralysis; facial rehab; gold weight; scleral lens; tarsorrhaphy; vestibular therapy; fatigue; swallowing issues; taste issues; tinnitus

* Tara Paultnpaul@comcast.net 303-868-7181CO3 cmRadiation - Gamma Knife422020BiCROSregrowth; facial paralysis; facial rehab; gold weight; scleral lens; tarsorrhaphy; vestibular therapy; fatigue; swallowing issues; taste issues; tinnitus

Samira Rajabisamirajabi@gmail.com 303 547-0043CO3.5 cmSurgery - Translab252012Farsi; Frenchregrowth; CSF leak; temporary shunts; eye issues; fatigue, headaches; tinnitus; taste issues; dental issues; chronic pain, SSD
Samira Rajabisamirajabi@gmail.com 303 547-0043CO3.5 cmSurgery - Retrosig252012Farsi; Frenchregrowth; CSF leak; temporary shunts; eye issues; fatigue, headaches; tinnitus; taste issues; dental issues; chronic pain, SSD
Bonnie Bostrombobon611@aol.com 860 214-3514CT1.7 cmRadiation - Gamma Knife652012short-term headaches
Stefanie Batson-Martinfloridaswimmer14@aol.com 407 493-7095FL4 cmSurgery - Translab302019Oticon Ponto tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues
Stefanie Batson-Martinfloridaswimmer14@aol.com 407 493-7095FL4 cmRadiation - Proton Beam312020Oticon Ponto tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues
Stefanie Batson-Martinfloridaswimmer14@aol.com 407 493-7095FL4 cmObservation252014Oticon Ponto tinnitus; headaches; facial twitching; fatigue; eye issues; balance issues
SherryCottrellsjrmcottrell@gmail.com561 704-6733FL7 mmSurgery - Translab512021Kanso 2 Cochlear Implantbalance issues; fatigue; headaches; taste/dental; tinnitus
* DyanneHughesdyhughes55@comcast.net 904 624-0940FL1.9 cmSurgery - Translab532009BiCROS; Bose noise reducer headphonesfacial neuromuscular rehab; synkinesis; Botox; eyelid surgery
* ChadNyechadnye@gmail.com 407 496-8357FL1.5 cmSurgery - Translab2011BiCROS; Bose noise reducer headphones
* ChadNyechadnye@gmail.com 407 496-8357FL1.5 cmRadiation - CyberKnifeBiCROS; Bose noise reducer headphones
Robert Olivooedsall4@aol.com 352 775-6858FL1.7 cmRadiation - Gamma Knife702015Phonak Paradise 90 Hearing Aids bilateral
David Puzzosecgen11@gmail.com 813 480-5679 FL1.4 cmObservationWidex BiCROS
* AgnesGarinoalgarino@sbcglobal.net314 610-9259 GA1.5 cmSurgery - Retrosig511996Phonak BiCROSheadaches; headache therapies
* MeredithDalymeredith@meredithdaly.com678.525.1941GA3.6 cmSurgery - Translab522012Phonak CROSdry eye; balance issues; dizziness issues
Jim Henscheljim.henschel@gmail.com 770.840.5470GA2.5 cmSurgery - Translab602021Phonak CROSeye issues; eye weight; facial paralysis; facial nerve reanimation surgery
Lisa Trumbulllisaannetrumbull@gmail.com 808 253-9522HI.13 cmSurgery - Translab372017balance issues; double vision; taste changes
* Leah Jenksleahgjenks@gmail.com 708 954-7774IL2 cmSurgery - Retrosig272022balance issues; vestibular therapy; tinnitus; SSD; dizziness
LaurieLichkollichko@comcast.net630 390-4470IL2.9 cmSurgery - Translab612021BiCROSSSD; taste issues; tinnitus; balance issues
SheriSettipanisbwerner@comcast.net 847 924-5929IL2 cmSurgery - Retrosig482016facial issues; eye issues; maintained hearing
* KathyGardnerkathyc0407@aol.com 502 593-9224KY3.4 cmSurgery - Translab552013Oticon BiCROS12/7 facial transfer; facelifts; browlift; gold weight; gold weight removal; punctal occlusion; vestibular rehab; NF2
* KathyGardnerkathyc0407@aol.com 502 593-9224KY3.4 cmRadiation - Gamma Knife572015Oticon BiCROS12/7 facial transfer; facelifts; browlift; gold weight; gold weight removal; punctal occlusion; vestibular therapy; NF2
DeborahPolsondecyrs@aol.com 502 930-3106KY1.3 cmSurgery - Retrosig592014headaches; head pain; neck pain; balance issues; vestibular therapy; tinnitus; titanium mesh; Botox for headaches
CathyBeardsleecbeardslee2@gmail.com305 439-2691MA3.4 cmFamily Member - Caregiver252023CROSHeadaches; CSF leak repair surgery; SSD; balance issues
PhyllisPearl-Baxterpbp214@yahoo.com 781 258-3926MA1 cmRadiation - CyberKnife442006PhonakSSD; migraines; balance issues; tinnitus
* MirandaSacharinm.sacharin@gmail.com 925 297-9435MA3.1 cmFamily Member - Caregiver522009facial retraining; eye weight; eye ptosis surgery; SSD; balance issues; cognitive issues
HeatherHomickhhomick93@gmail.com 240 508-4282MD3.7 cmSurgery - Retrosig252018SSD; facial reanimation; free muscle transfer; Botox; facial retraining; dry eye; eyelid weight removed; balance issues; vestibular therapy
BonnyLallybdaymusic@gmail.com 410 660-1259MD2.9 cnSurgery - Retrosig602017CROSscleral lens; eyelid weight (removed); migraines; vestibular therapy; tinnitus; fatigue; headaches
* AllisonShafferakgshaffer@gmail.com 301 706-7900MD.9 cmSurgery - Middle Fossa402010
* RickMayrmay726@gmail.com 734-812-8054MI2.5 cmSurgery - Middle Fossa522011Phonak hearing aid tinnitus; vestibular therapy
KennethPosnerkennyposner@gmail.com 248 464-0808MI1.5 cmSurgery - Middle Fossa512009vestibular therapy; migraines; headache therapy, maintained hearing
JillTollejilltolle@yahoo.com 818 219-5857MI2.5 cmSurgery - Translab412013vestibular therapy; tinnitus
* LauraFerencilkferenci@gmail.com 612 501-2248MN3 cmSurgery - Translab572016balance issues; vestibular therapy; blurry vision; eye surgery; fatigue; tinnitus; taste issues
JayMagrissojay.magrisso@gmail.com717 586-3275MN3 cmSurgery - Retrosig392019ItalianSSD; brain fog; fatigue; balance/dizziness issues; headaches; eye issues
NancyRheinnancyrhein@gmail.com 612-240-0415MN2 cmSurgery - Retrosig622016Phonak hearing aidbalance issues; dizziness; vestibular therapy; fatigue; headaches; taste issues
* CarolGardnercarolhgardner@gmail.com 573 690-3296MO3.1 cmSurgery - Translab2020BiCROSblephoplasty; titanium eyelid weight; facial therapy; Botox; TMJ
*PhyllisTrulockptru20@yahoo.com314-705-0883MO1.7 cmRadiation - Gamma Knife582005TransearTinnitus; facial issues; facial spasms; SSD
* StewartBindermarylandterp.888@gmail.com 919 624-3256NC2.3 cmSurgery - Translab592011Med-El Bonebridgefacial neuromuscular rehab; Botox; synkinesis; dry eye; platinum eye weight
* LisaFisherlfisher@rubollc.com 412 996-2386NC2.5 cmSurgery - Translab332017Balance issues; CSF leak; fatigue; dry eye; eye closure issues; eye drops; eye patch; eye tape; facial rehab for synkinesis; Botox; regrowth; dry mouth; dental issues; prescription toothpaste
* LisaFisherlfisher@rubollc.com 412 996-2386NC1.3 cmSurgery - Translab392023Balance issues; CSF leak; fatigue; dry eye; eye closure issues; eye drops; eye patch; eye tape; facial rehab for synkinesis; Botox; regrowth; dry mouth; dental issues; prescription toothpaste
KathyHillkjayhill@gmail.com 336 707-7013NC.8 cmSurgery - Middle Fossa522017Oticon Baha; Oticon More hearing aidvestibular therapy; tinnitus; dry eye; facial paralysis
NeilDonnenfeldndonnenfeld@gmail.com 617 285-0579NH1.4 cmRadiation - Proton Beam502013tinnitus; hyperacusis; synkinesis
* IrynaMosendzlutirinas@gmail.com 609 705-6623NJ2.3 cmSurgery - Middle Fossa282017Russian;Ukraniandry eye; regrowth
* IrynaMosendzlutirinas@gmail.com 609 705-6623NJ2.3 cmRadiation - Proton Beam302019Russian;Ukraniandry eye; regrowth
MarySteedmaryellen.steed@gmail.com347 551-3486NJ5 cmFamily Member - Caregiver112021SSD; dry eye; headaches; facial weakness; speech therapy; occupational therapy; balance issues
HowardWaldrophowardrop@rocketmail.com 201 818-8977NJ1 cmRadiation - Gamma Knife502015Oticontinnitus; balance issues
* TraceyCollinstracey.collins6273@gmail.com 581 382-3283 NY2.5 cmSurgery - Retrosig352009
ScottBornholdtsbornholdt@zoomtown.com 513 884-7442OH2.7 cmSurgery - Retrosig522022OticonFatigue; balance issues; vesibular therapy; tinnitus
* SandyHadgissjhadgis@gmail.com440 213-3577OH5 cmSurgery - Retrosig382022Oticon Ponto Double vision; stroke; dizziness; dry eye
* SandyHadgissjhadgis@gmail.com440 213-3577OH5 cmSurgery - Translab382023Oticon Ponto Double vision; stroke; dizziness; dry eye
ErinHeidricherinheidrich@gmail.com859 640-1083OH1.3 mmSurgery - Middle Fossa392021Osia 2 Balance issues; dizziness; vestibular therapy; cognitive behavioral therapy for tinnitus
* EmilyPraeterelpraeter@gmail.com 513 265-1350OH2 cmSurgery - Middle Fossa402018Phonak CROSbalance issues; dizziness; vestibular therapy; cognitive/neurological issues; fatigue; headaches
KateRoelkerkroelker@hotmail.com 513 939-5920OH1.8 cmSurgery - Middle Fossa652017Hearing aideye issues; tinnitus; facial therapy; vertigo; vestibular therapy; maintained hearing; tinnitus
* SaraWassermanartspeaks10@hotmail.com 928 301-8781 OH2.5 cm Family Member - Caregiver642015SSD; balance issues; dizziness, fatigue
* AliceWeddingaj2mydad@yahoo.com 513 315-2341OHlargeSurgery - Translab642012Bahatinnitus; vestibular therapy
DavidNoyesdcnoyes@comcast.net 503 419-7418OR3.5cmSurgery - Retrosig351999SpanishBahafacial rehab; facial surgery; vestibular therapy; eye weight
RobertBolenrjbolen@verizon.net 215 679-5945PA1.1 cmRadiation - Gamma Knife762018SSD; tinnitus
* MaryaCamillerimc.ana.philly@gmail.com215 313-0727PA2.3 cmSurgery - Retrosig422019balance issues; dizziness; vestibular therapy; headaches; facial weakness; dry eye; vision therapy; SSD
PatrickFinkpmfink@gmail.com 412 480-2765PA2.1 cmRadiation - Gamma Knife282017fatigue; tinnitus; headaches
* NancyGraffiusngraffius@comcast.net 610 939-9114 PA4 cmSurgery511994
* ElizabethKauermannidesignepk@gmail.com215 357 6321PA3.2 cmSurgery - Translab602021Hungarianoscillopisa; vestibular therapy; tinnitus; cognitive/neurolgoical issues; fatigue; taste issues
RobertVancebob@vancerenz.com 814 880-6084PA1 cmRadiation - Varian Trilogy602013Signia BiCROSvestibular therapy; tinnitus
* AnthonyDiBellaajd@orgtransitions.com 401 523-9467RI1.7 cm; 3.1 cmAvastin712019French; Italian; SpanishOticon OPN1NF2; tinnitus
* AnthonyDiBellaajd@orgtransitions.com 401 523-9467RI1.7 cm; 3.1 cmObservation441992French; Italian; SpanishOticon OPN1NF2; tinnitus
RickyRobersonrickynumber31@gmail.com803 729-4040SC3.5 cmSurgery - Translab482017Phonak BiCROSdizziness
Lisa Porischlisaporisch@gmail.com605 431-5827SD3 mmSurgery - Middle Fossa462022Pre-treatment headaches; balance issues; vestibular therapy; tinnitus; maintained hearing; emotional cognitive issues
* LaurenVadentarheelbluesy@gmail.com 615 232-4929TN1 cmSurgery - Translab352019fatigue; SSD; hemi-facial spasms; facial sensitivity; tinnitus; balance issues
* LindaDorasamianausa.dfw@gmail.com 817 244-0615 TX1.6 cmSurgery - Retrosig471995Spanishvestibular rehab; headaches; pain management
* LindaDorasamianausa.dfw@gmail.com 817 244-0615 TX3 cmObservation662014SpanishNF2
KatyFredericksenkatylf@yahoo.com 832 585 6346TX4 cmSurgery - Retrosig192019balance issues; vestibular therapy; pre-treatment headaches; facial issues (short-term); dry eye; watch and wait for regrowth
* LaurieReidlauriegailreid@outlook.com713 503-2788TX10 mmSurgery - Middle Fossa532020hearing preserved; balance issues; vestibular prehab; hearing sensitivity; custom ear plugs; fatigue; tinnitus; dry eye
* Laura Spencelauraspencetx@gmail.com 972 974-1516TX1.2 cmSurgery - Middle Fossa412019Oticon Baha facial Botox for synkinesis; DAO resection; vestibular therapy, severe dry eye; RX eye drops; Scleral lens; balance issues; headaches; fatigue
* JohnnyDiazjohnny.diaz@yahoo.com 904 738-5063VA2.5 cmSurgery - Middle Fossa392008Spanish
Mary AnnMugelmamugel@gmail.com 804 551-2928VA2.1 cmRadiation - Gamma Knife652019hydrocephalus; permanent VP shunt; fatigue; tinnitus; diminished hearing; balance issues; dizziness; vestibular therapy
* MichelleNemethmichelle.f.nemeth@gmail.com 703 772-7114VA1.4 cmSurgery - Middle Fossa272013maintained hearing
MaryGreenmarygreen4810@gmail.com 262 470-4810WI3.1 cmSurgery - Retrosig502017CROSvestibular therapy; speech therapy; synkinesis; facial rehab; Botox; eye issues; dry eye; headaches pre-treatment; hydrocephalus pre-treatment
* JudyJonesjjonescurran539@gmail.com 414 491-6249WI2.2 cmRadiation - CyberKnife602013trigeminal neuralgia; balance issues; headaches; tinnitus
* EmilyTruellanayoungadults@gmail.com920 229-5201WI3 cmSurgery - Translab272015Oticon Ponto PlusCSF leak; headaches; tinnitus; balance therapy
BrianVincentvinbri3@gmail.com 414 758-0807 WI1.8 cmRadiation - CyberKnife532016fatigue; tinnitus; headaches

 TogetherWeGiveHeader

Giving Tuesday is the global movement that encourages millions of people all over the world to give back, inspire others,
and take action to generate change. This year, there are three ways to participate that we think will make a difference in the AN community. 
Explore our page to see how you can join us!
 

GIVE BACK

Giving Tuesday Presentation

We're giving back to the AN community with a presentation from Dr. Marc Bennett and Dr. Kareem Tawfik of Vanderbilt University on Hearing Preservation Options. 

Please join us at 1:30 pm ET on Giving Tuesday - everyone is welcome! 

Register to join us on Zoom, or watch on the ANA Facebook Page

 INSPIRE OTHERS

#MyANStory

More than 3,500 patients will be diagnosed with an acoustic neuroma this year. These diagnoses can be frightening, overwhelming, and life-altering.
Where will these patients find the information, support, and community they’ll need?

Help us raise awareness and help others find the support they need by sharing your AN story.
Submit your story and share on social media using #MyANStory.

TAKE ACTION

25K in 25 Days Challenge 

Join our Giving Community! Help us continue our mission,
offering information and support to those who need us most.

There are two easy ways to give:
1. Contribute to our 25K in 25 Days fundraiser using our donor form.
2. Create a Giving Tuesday Facebook fundraiser

Your donation WILL make a difference!

GTDonate

ANA Contributors

The Acoustic Neuroma Association greatly appreciates the support of our generous donors. Contributions from patients, caregivers, volunteers, friends, family, and members of the medical community continue to make a tremendous impact.  

The mission of the Acoustic Neuroma Association involves education, communication, engagement, support, access to vital information, research, events, and partnerships with leading medical professionals. Services and benefits available to patients and their families continue to grow, and your contributions make all of that possible.

ThankYou

ANArchAngel

($5,000 and above)

Anonymous
Jeffrey D. Barr
Danielle Collins
Paul Larsen

ANAngels

($2,500-$4,999)

Krishna & Laxmi Bala
Martha Cluin
Gordon Brothers Group, LLC
The Integra Foundation

Grand Benefactors

($1,000-$2,499)


Jack Alweiss
Justin Anis
Martha and Alexander Huberts
Doris Johnson
Mary Ann Mugel
Tracy Schwimmer
Jim Shea

The Acoustic Neuroma Association has taken great effort to ensure accuracy as we express our appreciation.  If you notice an error or have a question concerning your contribution, please contact Jim Shea at director@anausa.org or 678-968-4705.
*This list includes contributions made 1/1/24 - 6/30/24.

 

Resources for Young Adults

The ANA provides the following resources to help bring young adults with ANs together and find information and support.

Young Adult Facebook Group

This is a closed group Moderated by ANA Staff and Volunteers.

 

Young Adult Online Support Group

The group meets several times a year via Zoom and is moderated by ANA Peer mentors.

For more information, contact:

Emily Truell, Peer Mentor/Support Group Leader, anayoungadults@gmail.com

Michelle Nemeth, Peer Mentor/Support Group Leader, michelle.f.nemeth@gmail.com

Melanie Hutchins, Manager, Volunteer Programs, volunteers@anausa.org.

 

Peer Mentor Program

Peer Mentors are volunteers who are acoustic neuroma patients and caregivers that are willing to talk about their acoustic neuroma experience. They provide information, encouragement, and support to other acoustic neuroma patients via telephone, email and video chat.  A list of peer mentors is provided in our free patient kit and is available in our member section. Please contact us to request a peer match today.

Request Free Patient Kit

Join our Mailing List

Upcoming Events

Resource Library - Learn About Acoustic Neuroma

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